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Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Hosted by Hugh Hill, Services Support Specialist at Brain Tumour Foundation of Canada, learn more about the organization’s resources, programs, and services for people affected by a brain tumour.
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Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease. Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yo ...
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We are proud to present our first podcast series, where we delve into the deeply personal story of one person's battle with cancer, alongside her dedicated caregiver. We'll explore the highs and lows, the triumphs and challenges, as we navigate the various stages of the cancer experience. You'll hear a story that will resonate with your own, as we explore the universal questions, concerns, and experiences that many of us encounter—symptoms, treatment decisions, managing side effects, and fin ...
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Sarah is a brain tumour survivor. She was diagnosed with a brain tumour 13 years ago, when she was 25 years old. She works as a registered nurse at The Hospital for Sick Children. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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In this episode of the Aunty M Brain Tumours Talk Show, we hear from Andy Tudor, who shares his personal battle with a brain tumour. Initially dismissing his symptoms as age-related, Andy's life took a dramatic turn when he was diagnosed with a meningioma. He recounts the challenging period leading to his diagnosis, the impact of waiting for surger…
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In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health a…
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In this episode of Aunty M Brain Tumour's Talk Show, in this deeply personal and inspiring episode, Marcus Elwell, father of three, shares his journey through a tumultuous period in 2019, marked by forgetfulness, stress, and the challenges of running a retail business amid the Brexit scenario. The episode delves into his struggles with health, the …
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In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound …
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Carolyn grew up in a First Nation community in Southeastern New Brunswick. She shares her mother Phyllis' story, a polio survivor who passed away from a brain tumour. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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In this episode of Aunty M Brain Tumour's Talk Show, we have two guests, Michelle and Karina, who both have optic nerve gliomas, a type of brain tumour. They share their experiences of being diagnosed and their treatment journeys. They emphasize the importance of finding support and not feeling alone in their journey. They also discuss their Instag…
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In this episode of Aunty M Brain Tumour's Talk Show, Israr Jan-Parker shares her journey of being diagnosed with a Clevel Meningioma, a rare brain tumour. Initially, her diagnosis was unexpected as she had sought medical attention for chronic back pain. The tumour was affecting critical structures in her brain, causing various health issues. Israr'…
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The "Aunty M Brain Tumours Talk Show" is an informative and inspiring podcast featuring discussions about brain tumours and the experiences of those affected by them. In this episode, Sam shares her journey with brain tumours, beginning with her diagnosis in June 2013. She initially experienced symptoms like pulsatile unilateral tinnitus, balance p…
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In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…
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In this Aunty M Brain Tumour’s Talk Show episode, we speak with Dr Christopher McConville, an expert in drug delivery for cancer treatment, who is dedicated to addressing the challenges in brain tumour and pancreatic cancer therapy. These cancers have seen little improvement in survival rates due to drug delivery issues. McConville's team has devel…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Hugh Adams from the charity Brain Tumour Research. He talks about their goal to reach 100,000 signatures by Wednesday. They already have well over 70,000 signatures but need one last push with your help. Sign and share the petition HERE Hugh talks about the power of Petitions and why the …
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In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Arvin Koshal. He revealed his battle with Diabetes Insipidus and the discovery of 6 tumours on his right optic nerve. His tumour was found by chance after a car accident he was in. Following radiotherapy, he found himself in a new world of new friends, also affected by a brain tumour. …
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Ellen Yates. Ellen reflects on her acoustic neuroma diagnosis, discussing initial symptoms, and misdiagnoses. She emphasizes the emotional toll, urging self-compassion for those with brain tumours. Ellen's fundraising efforts aim to combat isolation, support survivors, and honour her l…
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In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumours. Will shares what it was like for him as an 11 year…
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In this podcast, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects. Susan shares her story of recovery and her involvement in The Beyond Recovery Project, a non-profit community supporting brain…
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive o…
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Ever wondered how it feels to journey alongside a loved one battling cancer? Here’s your chance to walk in the shoes of a caregiver, as we present to you "tumour, tumour, on the wall", a podcast series by hope love cancer. Welcome to our preview episode. Throughout this series we will offer insights into the triumphs, the struggles, and the courage…
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In this episode of Aunty M's Brain Tumour Talk Show, I interview Carol Vaughn from California, whose life was changed in 2008 by a brain tumour. Carol recounts her diagnosis, treatment, recovery, and the vital importance of finding online support groups. Carol's journey begins with back surgery and triggering long drives, causing nausea and vomitin…
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Robert and Carol Shaw share their journey dealing with Robert's brain tumour diagnosis and the challenges of the benefits system. Robert's diagnosis, treatment, and the importance of faith and positivity are recounted. They highlight the misunderstandings around brain tumours and the struggles with benefits, particularly Personal Independence Payme…
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In 2011, Julia's life took a turn when she began experiencing severe dizziness. Misdiagnosed with a sinus infection, her condition worsened, leaving her nauseous and unable to walk straight. After unsuccessful treatments, a private consultation revealed a shocking truth - she had a brain tumour. With two young children, Julia faced the unexpected n…
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Welcome back to another inspiring episode of Aunty M Brain Tumours Talk Show! Today, we sit down with Jacky Fredrickson, an extraordinary individual who penned down a book titled "Jon: A True Story of Love, Courage and Faith", chronicling the heart-wrenching journey of her son's battle with brain cancer. Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠Twitter…
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The conversation follows Joss Fleming, who began experiencing seizures at the age of 16, initially attributing them to déjà vu. Over time, the seizures escalated, leading to a notable incident during a vacation. Medical evaluations revealed the presence of a Dysembryoplastic neuroepithelial tumour causing epilepsy. After attempting various medicati…
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Karen-Lisa is a brain tumour survivor. Her journey began in 2015 with the diagnosis of a pituitary adenoma. In the course of this interview, Karen-Lisa openly shares her story. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this episode include: Family Days Brainy Bags Online support group for parents Talking to children about brain tumours Tali…
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Welcome back to another inspiring episode of Aunty M Brain Tumours Talk Show! Today, we sit down with the courageous Leander Stones as she shares her remarkable story of battling a brain tumour, where the removal of her Sphenoid Wing Meningioma left her with Hemiplegia. Join us as Leander opens up about her life-changing experience and the strength…
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Melinda's life took an unexpected turn when she was diagnosed with a meningioma in her brain's Posterior Fossa, a type of brain tumour. Initially misdiagnosed as migraines, she faced walking difficulties, violent headaches, and blurred vision. Rushed to the hospital, she underwent emergency surgery to address swelling caused by the tumour. Further …
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Emma had been experiencing persistent headaches and dizziness for six months. Despite multiple visits to her GP, various medications, and even trying beta-blockers, her condition didn't improve, and the headaches became unbearable. Emma decided to seek private medical care, leading to an MRI that delivered devastating news: she had a brain tumour p…
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In September 2012, Sarah Collins, mother of two, was at the peak of her singing career, performing in bands and enjoying good health; However, her life took an unexpected turn when she discovered a brain tumour eight weeks after giving birth to her daughter. Looking back, she recalls moments during her pregnancy when she experienced headaches and u…
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In 2004, Dr. Helen Bulbeck's life took an unexpected turn when her daughter, Meg, was diagnosed with a grade 2 brain tumour at the tender age of 18. The shocking diagnosis left the family feeling lost and desperate for support, but little help was available for brain tumour patients and their families at that time. Determined to find a solution, He…
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(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis. This episode…
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In this interview with Shona Floyd, she talks about her daughter Tasha, who tragically passed away from a brain tumour. Shona highlights the importance of brain donation for research purposes, specifically for Diffuse Intrinsic Pontine Gliomas (DIPG), the type of brain tumour Tasha had. She emphasizes the need for more brain samples to aid research…
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Elizabeth Silvas, also known as Lizzy The Hedgehog, shares her inspiring story of overcoming a brain tumour and meningitis at the age of 11. Initially misdiagnosed with migraines, Lizzy's condition worsened until she was finally diagnosed with a brain tumour above her brainstem. Facing the difficult decision of whether to undergo surgery, Lizzy bra…
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Dawn Hamill, a brave and inspirational woman, survived a non-cancerous brain tumour (Parasaggital Meningioma) in 2008 and later Grade 2 Invasive Ductal Carcinoma Breast Cancer in 2014. She emphasizes the importance of support and loved ones in overcoming life's battles. For survivors, acceptance of the changes caused by health conditions is an ongo…
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In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis. We also hear from other young adults about the impact these events have on people like th…
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Julie Liddle shares her experience when she was diagnosed with a brain tumour and how she became a Brain Tumour Support Worker. Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates …
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(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. This episode contains conversations that some people may find distressing such as the effects of the tumour…
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Ken's son, Denis, was diagnosed with glioblastoma back in 2013. Ken was Denis' caregiver throughout his brain tumour journey. Denis was a young brain cancer advocate, and he worked as a support services specialist at Brain Tumour Foundation of Canada before he passed away on July 30th, 2022. Follow us on Facebook, Instagram, Twitter, Youtube and Li…
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Pam is a caregiver for her husband Mike, a brain tumour survivor. She also volunteers at Brain Tumour Foundation of Canada as the coordinator of the Winnipeg Brain Tumour Walk. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her …
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In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the Game here You can read more about Dave Bolton here You c…
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In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed looking into. They explain what the headaches were like …
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In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so much more than just rasing money for the charity as Phoebe explains in this episode. If you have any questions you ca…
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In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if you would like to speak to our support team you can emai…
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In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renowned artists from around the globe. The aim of the exhibi…
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In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid brain haemorrhage when he was also 38. Whilst not caused…
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In this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information around not just benefits but a wide range financial issues. …
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In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about the different types of seizures and how medication can help to get these under control. You can find out more about brain …
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