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EP 76: The Courageous Parents Network with Blyth Lord
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What is a parent to do when they are parenting a child with a serious or life limiting illness? The range of supports cross over medical, mental health, palliative care and embracing anticipatory grief. Then there is advocacy for your child and managing the needs of the other members of your family. This is overwhelming. Blyth was faced with this when her daughter, and also her nephew, was diagnosed with Tay-Sachs, a rare and incurable genetic illness that ends in early death. Resulting from this tragedy Blyth founded the Courageous Parents Network in 2014 to support those trying to navigate an unfathomable road. She shares her story with Ken in this episode.
https://courageousparentsnetwork.org/
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