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Hi! Welcome to the Lively Living With Lupus podcast. I’m Lydia Romero Johnson, RN & holistic health coach. I teach women with lupus how to regain their energy, thrive without pain, and create the life of their dreams. My intention here is to help you realize that while you have lupus, you also have many tools, strategies, and resources available to live YOUR happiest and healthiest life. I’ve struggled with lupus, and now I thrive. I want to create a ripple effect of women using natural solu ...
 
The Lupus Living Podcast will inspire you to keep going through the challenges of living with lupus. Gwen Alexander, your host, was diagnosed with lupus after several emergency room visits and hospital stays. She has had to make many changes to her life since her diagnoses. She has been on a journey of making changes to her life that will help her still live a full life with lupus. Follow the podcast to learn how to navigate the flare ups of living with lupus. How to connect with Gwen: Email ...
 
Susan Hendrix is a lupus survivor who has achieved a great deal while dealing with this chronic illness. She will take you through her lows and highs, but most importantly she will bring further awareness to this chronic illness and allow others to know you can still live your life to the fullest. Susan Hendrix is educated in the field of Health and Science, at the age of 29 she became an entrepreneur and established her own Durable Medical Equipment Company along with a Medical Consulting F ...
 
Lupus on Jam is a podcast where I will be talking about my illness, which is called Lupus and how it is affecting me physically, mentally, socially and other chronic illnesses. 18/03/2021 starts day one of knowing that I have SLE and me coming home from the hospital. Check out my website: lupusonjam.webador.co.uk
 
Welcome to an awesome community of love and support for everyone whose life is affected by Lupus, care-givers included. In this podcast, I share my life with Lupus and listen to your stories. We will talk about ourselves and hear the opinions of experts on issues that bother us the most. You are not alone in this war. Tune in and enjoy the joy ride.
 
Lupus Science and Medicine is a global, peer reviewed, Open Access, online journal that provides a central point for publication of basic, clinical, translational, and epidemiological studies of all aspects of lupus and related diseases. It is the first lupus-specific Open Access journal in the world and was developed in response to the need for a barrier-free forum for publication of groundbreaking studies in lupus. * The purpose of this podcast is to educate and to inform. The content of t ...
 
Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus. See acast.com/privacy for privacy and opt-out information.
 
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Living with a chronic illness is hard; its even harder trying to describe what it's like to live with it. In this episode of the Lupus Living Podcast, Gwen shares what listeners wish you knew about living with this disease. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect…
 
In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health. Also new approve first systemic treatment for alopecia. Go on over and visit my TeePublic store at: https://www.teepublic.com/stores/my-story?page=6&re…
 
No episódio 13 do Lupus in Fabula: Pele de Cordeiro, Rodrigo Grola e Marcos Keller conversam com Marina Jordá e Andy Pereira sobre a lendária Pamela Colman Smith (#pamelacolmansmith) a ilustradora por trás do deck de #tarot mais vendido do mundo, o Rider-Waite-Smith. LiF: Pele de Cordeiro, uma produção HodStudios Apresentação: Cris Dornelles, Cussa…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color. You will also hear the TYK2 Inhibitor shows promise in Lupus. Resource MedPage Today Please visit my TeePublic Store all you have to do is click the link below. TeePublic Link: : https://www.teepublic.com…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex. You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay. Resource MedPage Today National Institute of Health Check out my store at: https://www.teepublic.co…
 
No episódio 12 do Lupus in Fabula: Pele de Cordeiro, Rodrigo Grola e Marcos Keller conversam com Janaína Azevedo e Lolla Alonso sobre a #LeNormand e #BaralhoCigano. LiF: Pele de Cordeiro, uma produção HodStudios Apresentação: Cris Dornelles, Cussa Mitre, Marcos Keller e Rodrigo Grola Janaína Azevedo - https://casadejanaina.com.br Lolla Alonso - htt…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject. Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death. Resource MedPage.com --- Send in a voice message: h…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
Duane Peters from the Lupus Foundation of America talks to Dr Cristina Drenkard from Emory University and Dr Teresa Brady from Clarity Consulting and Communications, both based in Atlanta, USA. They discuss their paper on the relationship between levels of self-efficacy and health behaviours and outcomes in black women with SLE. Their study specifi…
 
No episódio 11 do Lupus in Fabula: Pele de Cordeiro, Cris Dornelles e Marcos Keller conversam com Raph Arrais e Caio Chagas sobre a meditação do Sefirat ha #Omer. LiF: Pele de Cordeiro, uma produção HodStudios Apresentação: Cris Dornelles, Cussa Mitre, Marcos Keller e Rodrigo Grola Raph Arrais - https://www.raph.com.br Caio Chagas - https://www.ins…
 
People living with lupus have the power to be invisible. Lupus is known as an invisible disease because many of the symptoms can not be seen on the outside. Many of us living with lupus are also good at hiding our symptoms. In today’s episode, you’ll find out what we can learn from the X-Men characters how to live with an invisible “superpower.” Ge…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II You will also hear about the current health challenges that I have been dealing with. Resource MedPage Today --- Send in a voice message: https://anchor.fm/susan-hendrix/message…
 
Duane Peters from the Lupus Foundation of America talks to Dr Sylvia Kamphuis and Dr Javad Wahadat from the Erasmus Medical Center in Rotterdam in the Netherlands about aiming for a Low Lupus Disease Activity State (LLDAS) in children with systemic lupus erythematosus (SLE). They outline the difference between LLDAS and clinical remission (CR), and…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
Trigger Warning: Today’s episode I cover discuss death and estate planning, domestic violence and issues pertaining to end-of-life decisions. If any of these topics are difficult for you to listen to, I recommend skipping this episode or listen at a time you feel you are ready to deal with these topics. In today’s episode, the subject of estate pla…
 
In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on. Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19. Resource MedPageToday --- Send in a voice message: https://anchor.fm/susan-hendrix/message…
 
No episódio 10 do Lupus in Fabula: Pele de Cordeiro, Cussa Mitre e Marcos Keller conversam com Cartre Sans e Norton Bell num papo muito interessante sobre #Música e #Magia. LiF: Pele de Cordeiro, uma produção HodStudios Cartre Sans - https://www.instagram.com/cartre.sans https://www.instagram.com/sonsdemercurio Sons de Mercúrio no Spotify - https:/…
 
In this episode you will hear about the No Surprises Act (Surprise Billing). Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus. Resource lupus.org MedPage To…
 
Are you an active patient or passive patient when it comes to your doctor visits? Being a passive patient isn’t a negative but it could hamper your doctor in working with you to make decisions about your lupus care. In today’s episode, Gwen shares the importance of taking an active role in your healthcare. Get the book “Living Life with Lupus” on A…
 
Lupus and comfortable are not two words that are usually used together. In today’s episode, Gwen shares how having her blood drawn helped her realize she’s in a comfortable place with lupus. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen…
 
You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021. For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus. Resource U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus. --- Sen…
 
Duane Peters from the Lupus Foundation of America interviews Professor Iryna Kulyk from Indiana University in the USA and Professor Martin Kriegel from the University of Münster in Germany and Yale University in the USA. They discuss their study, presented at the Lupus 21st Century conference in September 2021, on the influence of the consumption o…
 
In this you will hear what research state about PTSD in the development of lupus, also you will hear about my upcoming procedure. We also pay tribute to the first Africa American Doctor in Honor of Black History Month James Derham. Resource MedPage Today (18, February 2022) PTSD May Play a Role in the Development of Lupus. --- Send in a voice messa…
 
No episódio 9 do Lupus in Fabula: Pele de Cordeiro, Cussa Mitre, Rodrigo Grola e Marcos Keller conversam com Andy Pereira, Caio San e Raphael Salimena num papo muito interessante sobre o #Tarot, a #Arte e seus contextos históricos. Tarot: Mitos Modernos e a Cultura Pop - Arcanos Maiores - Março de 2022 30% de Desconto para compras até o fim de feve…
 
It is possible to accomplish your goals and live a life with lupus. It may take some work, but it can be done. In today’s episode, Gwen shares an article by Meghan Beaudry on how to accomplish your goals despite having lupus. Article by Andrea Beaudry: https://lupus.net/living/accomplish-goals Get the book “Living Life with Lupus” on Amazon: Living…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
In this episode you will hear about the most common neuropsychiatric disorder people with lupus have. You will also hear the latest in lupus news. You will hear about African American women with lupus at higher risk for adverse perinatal outcomes. You will also learn a little-known Black History Fact. Resources Medline Plus (02, February 2022) SAD.…
 
What comes to mind when you hear someone had shingles? Two words to describe shingles is lots of itching and pain. In today’s episode, Gwen shares how she mistook the symptoms of shingles for a lupus flare. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with G…
 
Duane Peters from the Lupus Foundation of America interviews Dr Erik Anderson and Dr Meggan Mackay from the Feinstein Institutes for Medical Research in New York in the USA. They discuss their study into imbalances in quinolinic acid and kynurenic acid levels in the brain in SLE patients, and propose that the ratio between these two metabolites cou…
 
Today’s episode is a bonus episode. It’s about a type of exercise called Low Intensity Steady State or LISS for short. Gwen shares the episode from The Losing Weight to Gain Control Podcast. The information provided gives another option for those living with lupus to try and stay active. Visit the Lupus Living Merchandise Online Store: https://tees…
 
In this episode you will hear research from 1 year ago that states the number of individuals with lupus is 200,000 and larger numbers have not been unverified. You will also hear how lupus can affect the heart. Resources John Hopkins (2022) How Does Lupus Affect The Cardiovascular System usnews.com (2022) More Than 200,000 Americans Have Lupus (Hea…
 
No episódio 8 do Lupus in Fabula: Pele de Cordeiro, Rodrigo Grola, Cussa Mitre e Marcos Keller conversam com Marcelo Del Debbio sobre Runas e Tarot. LiF: Pele de Cordeiro, uma produção HodStudios Apresentação: Cris Dornelles, Cussa Mitre, Marcos Keller e Rodrigo Grola Edição: Norton Bell … Todas as opiniões e comentários feitos pelos convidados do …
 
One aspect of lupus is dealing with pain. That could be joint pain, muscle aches or headaches. In today’s episode, Gwen shares how she deals with pain and also when it’s time to talk to your doctor about it. Visit the Lupus Living Merchandise Online Store: https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on …
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
O projeto Mind Eye agora também em podcast. … Apoie-nos em Catarse.me/lifhod e assista ao vivo as gravações deste programa! Siga-nos em nossas redes sociais! Twitter: https://twitter.com/lifhod Instagram: https://instagram.com/lifhod Facebook: https://www.facebook.com/lifhod Assine nosso canal no Youtube! YouTube.com/lupusinfabula…
 
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