Disability Rap podcast

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This Is Woman's Work with Nicole Kalil

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How To Pitch Yourself (And Get A Yes) | 300 27:52

for 12 dager siden27:52

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We made it— 300 episodes of This Is Woman’s Work ! And we’re marking this milestone by giving you something that could seriously change the game in your business or career: the skill of pitching yourself effectively. Whether you’re dreaming of being a podcast guest, landing a speaking gig, signing a client, or just asking for what you want with confidence—you’re already pitching yourself, every day. But are you doing it well? In this milestone episode, Nicole breaks down exactly how to pitch yourself to be a podcast guest … and actually hear “yes.” With hundreds of pitches landing in her inbox each month, she shares what makes a guest stand out (or get deleted), the biggest mistakes people make, and why podcast guesting is still one of the most powerful ways to grow your reach, authority, and influence. In This Episode, We Cover: ✅ Why we all need to pitch ourselves—and how to do it without feeling gross ✅ The step-by-step process for landing guest spots on podcasts (and more) ✅ A breakdown of the 3 podcast levels: Practice, Peer, and A-List—and how to approach each ✅ The must-haves of a successful podcast pitch (including real examples) ✅ How to craft a pitch that gets read, gets remembered, and gets results Whether you’re new to pitching or want to level up your game, this episode gives you the exact strategy Nicole and her team use to land guest spots on dozens of podcasts every year. Because your voice deserves to be heard. And the world needs what only you can bring. 🎁 Get the FREE Podcast Pitch Checklist + Additional Information on your Practice Group, Peer Group, and A-List Group Strategies: https://nicolekalil.com/podcast 📥 Download The Podcast Pitch Checklist Here Related Podcast Episodes: Shameless and Strategic: How to Brag About Yourself with Tiffany Houser | 298 How To Write & Publish A Book with Michelle Savage | 279 How To Land Your TED Talk and Skyrocket Your Personal Brand with Ashley Stahl | 250 Share the Love: If you found this episode insightful, please share it with a friend, tag us on social media, and leave a review on your favorite podcast platform! 🔗 Subscribe & Review: Apple Podcasts | Spotify | Amazon Music…

Disability Rap

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FREED’s monthly radio show on KVMR 89.5 FM Nevada City. Listen live on the first Monday of each month from 6:30 to 7 p.m.

61 episoder

#Society #From KVMRFM

Disability Rap

updated for 19 dager siden

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FREED’s monthly radio show on KVMR 89.5 FM Nevada City. Listen live on the first Monday of each month from 6:30 to 7 p.m.

61 episoder

#Society #From KVMRFM

Alle episoder

Disability Rap

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Exploring Late-diagnosed Autism 35:15

for 19 dager siden35:15

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April is Autism Acceptance Month, and today we’re honoring that by spending the show talking about autism and specifically late-diagnosed autism. Autism is a broad umbrella for describing how some people think, feel, and act differently from what is considered typical or normal. We did a show in January on neurodivergence. Autism is a form of neurodivergence, and autism is a disability. Autism manifests in each person differently, but common experiences of autistic people are finding socializing challenging and/or tiring, getting overwhelmed in loud or busy spaces, having intense interests that you keep coming back to, and preferring order and routine. Some people use repeated motions or actions to calm down their nervous system and/or express joy and happiness. Some autistic people hide - or mask - their emotions in order to fit in socially. This can sometimes lead to mental illness. For more on all of this, we are joined by Kristen Hovet, the founder and creator of The Other Autism podcast . Kristen was diagnosed with autism in her 30s. Before that, she was labeled shy, gifted, intense, sensitive, reserved, but never autistic. This, unfortunately, is a common experience, especially for women and those assigned female at birth. We’ll explore why this is and what factors lead to this underdiagnosis later in the show. Kristen Hovet has a Master’s Degree in Health Studies from Athabasca University in Alberta, Canada. She’s currently a Research Communications Specialist at the British Colombia Children's Hospital Research Institute in Vancouver.…

Disability Rap

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Biden Administration Official Responds to Medicaid Threats 48:10

for 7 weeks siden48:10

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Today, we are joined by Emily Voorde, a former Biden Administration official and a top staffer in the Pete Buttigieg Presidential campaign. We talk with Emily about the current threats to Medicaid funding that are working their way through Congress. We also hear first-hand about the challenges people with mobility disabilities and assistive devices face when flying commercially, and we get Emily’s response to a recent lawsuit challenging rules set by the Biden Administration that aimed to make air travel safer and easier for people with disabilities. Emily Voorde is the Founder and CEO of INTO Strategies, a Disabled-led consultancy firm that assists companies, movements, and political campaigns to develop inclusive access solutions. In 2022, President Joe Biden appointed Emily to a seat on the National Council on Disability, a position she held until January of this year. Prior to joining the National Council on Disability, Emily was the Associate Director of the White House’s Office of Public Engagement under President Biden, where she served as a liaison between the Biden Administration and the disability community. During the 2020 Presidential run, she worked for Pete Buttigieg’s campaign, serving as Trip Director and “Body Woman” for Buttigieg’s husband, Chasten Buttigieg. Emily Voorde grew up in South Bend, Indiana. She was born with osteogenesis imperfecta, a genetic condition that causes her bones to be brittle and break easily. She uses a wheelchair to get around. Emily first met Pete Buttigieg when he came to speak in her high school Government class during his run for Mayor of South Bend. Emily volunteered for his mayoral campaign and then interned in his office one summer. Buttigieg has credited Emily for his interest in and awareness of disability rights.…

Disability Rap

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No One Is an Island: Disability and Polyamory 45:56

for 11 weeks siden45:56

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It’s February, and Valentine’s Day is around the corner. We have a tradition here on Disability Rap of doing a show focused on love and relationships at this time of year. We’re continuing that tradition on this show with a roundtable of guests to talk about disability and polyamory. Why do a show about polyamory on Disability Rap? Well, there is actually more overlap than you might think, unless of course you are disabled and polyamorous! Last month, we did a show on neurodivergence, and there’s actually quite a bit of overlap between the neurodivergent and polyamorous communities. We’ll get into that in the show. And then in polyamory, there’s this acknowledgement that no one partner should be expected to meet all of someone’s romantic and/or sexual needs, and as people with disabilities, many of us are used to getting our needs met by multiple people. So the extension to the romantic arena isn’t that hard for some people with disabilities. For more on all of this, we’re joined by a roundtable of guests. Alyssa Gonzalez is a biology Ph.D., public speaker, and writer. She writes about biology, history, sociology and her experiences as an autistic ex-Catholic Hispanic transgender immigrant to Canada on her blog at The Perfumed Void. She also writes speculative fiction that explores social isolation, autism, gender, and trauma. Alyssa’s first book, Nonmonogamy and Neurodiversity , was included in the More Than Two Essentials series, a collection of books by Canadian authors on specific topics related to polyamory and nonmonogamy. Dr. Elisabeth “Eli” Sheff has studied sex and gender minority families for over 30 years, with a particular research interest in children of polyamorous families. She has written four books on polyamory, including The Polyamorists Next Door: Inside Multiple-Partner Relationships and Families and When Someone You Love is Polyamorous: Understanding Poly People and Relationships . Eli has appeared on CNN, NPR, and National Geographic, and has been interviewed by Vouge, BuzzFeed, and The New York Times. Leanne Yau is a British award-winning polyamory educator, writer, speaker, certified sex and relationships educator, and trainee psychosexual therapist whose work is all about non-monogamy and sex positivity. She produces educational and entertaining multimedia content about creating healthy and sustainable non-monogamous relationships, drawing from her lived experiences as a polyamorous, bisexual, neurodivergent, and Asian agender femme who has been openly non-monogamous since 2016. Katie Tastrom is a disability justice activist and writer who has worked as a lawyer, social worker, and sex worker. Her work has appeared in the anthologies Burn It Down: Feminist Manifestos for the Revolution , and Nourishing Resistance: Stories of Food, Protest, and Mutual Aid , as well as all over the internet, including Truthout, Rewire, and Rooted in Rights. She’s the author of A People’s Guide to Abolition and Disability Justice . Her 2018 article, Here Are 7 Reasons Why Polyamory Is More Difficult When You’re Disabled, appeared in Everyday Feminism.…

Disability Rap

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Discovering Neurodivergence in Adulthood 42:01

for 16 weeks siden42:01

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Neurodivergence is the recognition that not all brains work the same way. It’s a broad spectrum of brain behavior that’s outside of what’s considered standard or “normal.” Today on the show, we explore neurodivergence with two guests who recognized their neurodivergence as adults. They share how this revelation has changed their understanding of their upbringing, their relationships, their work, and their daily lives. Amanda Kennon is an American Sign Language Interpreter who lives in the Philadelphia suburbs. She, who has a neurodivergent child, was inspired to embark on her own journey of self-discovery about how neurodivergence has impacted her personally and in her professional life. She is currently working on research on neurodiversity in the interpreting profession along with her friend and colleague Dr. Laura Polhemus. Their ongoing research includes the experiences of neurodivergent interpreters and consumers. Amanda and her colleague Laura presented at the 2023 Registry of Interpreters for the Deaf Conference, April 2024 Registry for the Deaf Neurodiversity Webinar Series, and 2024 Conference for Interpreters Trainers. John Leimgruber grew up in the mid-west in the 1980’s. He turned his developing interest in computers into a master’s degree in electrical and computer engineering. He now lives in Philadelphia where he enjoys exploring his interests including computer gaming, mysticisms, polyamory, and psychology. While not professionally diagnosed, John identifies with late diagnosed Autism.…

Disability Rap

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Addiction Recovery Is a Disability 29:35

for 20 weeks siden29:35

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On this episode, comedian Mean Dave shares how comedy led him to discover his addiction recovery is protected by the ADA, and how he’s bringing disability awareness to 12-step programs, helping people understand meetings as the “ramp” that gets recovering addicts up to the “curb” of a manageable life. Mean Dave, who is a fixture in comedy clubs around the San Francisco Bay Area. He is in his tenth year of addiction recovery. In October, Mean Dave MC’d the Comedians with Disabilities Act when FREED brought that comedy troupe to Grass Valley for a fundraiser at The Center for the Arts. Mean Dave has also opened for Josh Blue, Jay Mohr, Judy Tenuta, and Big Jay Oakerson, and has toured many universities across the United States.…

Disability Rap

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A Comic Draws (on) his Disability Experience 44:19

for 24 weeks siden44:19

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Today, we are joined by Jared Wikofsky. He is an independent artist and a comic creator. Jared has self-published and produced over 200 pages of comic work. Recently, Jared received a grant from Upstate Creative Corps. This led to his comic book, FALLING. The book delves into a life altering diagnosis and the long-lasting effects of that diagnosis. Jared also runs and edits a podcast entitled PLAYING WITH MADNESS PODCAST. It is a comedy/horror show airing on all the major podcast platforms.…

Disability Rap

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Disability in the Workforce 51:24

for 29 weeks siden51:24

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October is National Disability Employment Month, and we’re celebrating with two guests who have cerebral palsy and found fulfilling careers (and even a second career) while overcoming barriers both before and after the Americans with Disabilities Act. We talk with David Clark and Whittier Mikkelsen about their experiences in the workforce, challenges and misconceptions they had to confront and overcome about their disabilities, and how their disabilities have helped to shape their lives and careers. David Clark is a computer programmer and systems engineer based in the Boston area. Growing up in Connecticut in the ‘70s and ‘80s, David was quickly identified as a candidate for inclusive education at a time when this wasn’t the norm. He excelled in school and went on to The University of California, Berkeley, receiving a BA in Cognitive Science & Rhetoric. Through his career, he has built vast experience with online application development and server administration. David currently works as a Systems Designer in the Digital Research Applications team at Mass General Brigham. Whittier Mikkelsen was an emergency room clinical psychologist. When chronic pain forced her to move away from this career and slow down, she took the opportunity to look deeply within herself and at the natural world. Through this, she reconnected with her passion for photography and artmaking. Whittier’s art has been shown at the Stirling Art Gallery in Dunedin, Florida, The Dunedin Fine Arts Center, The Art Lofts in St Petersburg, Florida, and at local cafes. You can see some of Whittier's photographs on her website .…

Disability Rap

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The Comedians with Disabilities Act 38:48

for 33 weeks siden38:48

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Next month, FREED will be bringing The Comedians with Disabilities Act to downtown Grass Valley for a night of laughter, entertainment, and reflections on being disabled in our ablest society. The Comedians with Disabilities Act is a collection of comedians who have disabilities, both seen and unseen, who bring forth the humor they find in their lived experiences as disabled people. The Comedians with Disabilities Act will be performing on October 16 at 7 p.m. at The Center for the Arts in downtown Grass Valley as a fundraiser for FREED. Click here for more information and to purchase tickets to the show! Today on Disability Rap, we speak with Nina G, a comedian who performs with The Comedians with Disabilities Act and one of the comedians who will be in the Grass Valley show. Nina is an author who has written three books, including Once Upon an Accommodation: A Book About Learning Disabilities, and she just recently debuted at #1 on two major streaming sites with her solo comedy album, Stutterer Interrupted. Nina has been an advocate for people with disabilities for over 20 years. She has been on many talk shows, radio broadcasts and podcasts.…

Disability Rap

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Reflections 34 Years After the Americans with Disabilities Act Was Signed 42:40

for 37 weeks siden42:40

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Last month, we marked the 34th anniversary of the Americans with Disabilities Act of 1990. The ADA granted equal rights and equal protection to people with disabilities in the United States. Today, we wanted to celebrate the anniversary of the ADA by looking back and looking forward at all the work that still needs to be done to make a truly inclusive world for all people, regardless of ability. We’re joined by two guests. Beck Levin is a Systems Change Advocate at the Dayle McIntosh Center, which is the independent living center in Anaheim, California. Rebecca Donabed is also with us. Rebecca is a Community Organizer with Resources for Independence Central Valley, the independent living center in Visalia, California.…

Disability Rap

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Managing Mental Illness and the Muse – a Filmmakers Journey 29:57

for 42 weeks siden29:57

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Our guest today, Philip Brubaker, notes that there’s unfortunately a real stigma around mental illness, and that needs to change. Philip is an internationally known and recognized filmmaker and videographic essayist. He also has bipolar disorder. In his most recent film, “How To Explain Your Mental Illness to Stanley Kubrick,” Philip tackles head on the often negative depictions of mental illness in Twentieth Century cinematography. In this deeply personal film, he juxtaposes his own journey with bipolar disorder with images from iconic films that show characters with mental illness as violent and suicidal. In the film, Philip challenges a manifestation of Stanley Kubrick to confront the way Kubrick portrayed mental illness and the effects those portrayals had on society. This is not Philip’s first film on the subject of mental illness. His 2009 documentary, “Brushes With Life: Art, Artists and Mental Illness,” won multiple awards and was aired on public television. His work has been featured in the Adelio Ferrero Film Festival, the Mental Filmness Festival in Chicago, and the FILMADRID Festival in Madrid, Spain.…

Disability Rap

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Go Green for CP’s Nicole Luongo 30:47

for 46 weeks siden30:47

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We’re joined today by Nicole Luongo, an advocate, author, and public speaker who has Cerebral Palsy. In 2019, Nicole started The Go Green for CP campaign to raise awareness for cerebral palsy in this country and around the world. Through her leadership, the campaign succeeded in getting at least one building or landmark in almost every state lit up in green on National Cerebral Palsy Awareness Day on March 25th and on World CP Day on October 6th. In 2021, she launched a campaign to have the White House light up in Green annually on March 25th. She also created the social media campaign What CP Looks Like. Nicole is the author of Naked Desires , a book of poetry that chronicles her quest and challenges to find true love. She is a fitness enthusiast and has encouraged others to enjoy fitness and get moving, reshaping our notion of what fitness looks like.…

Disability Rap

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Hikers Summiting Peaks with their Wheelchairs 44:58

for 51 weeks siden44:58

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Today, we are joined by two outdoor enthusiasts and avid hikers, Chris Layne and Daniel Wilson. Both Chris and Daniel are wheelchair users. They work with support teams and use specialized equipment to hike trails that are anything but wheelchair accessible. Chris has hiked up Mt. Elbert, the highest peak in the Colorado Rockies. It’s over 14,000 feet. Daniel has traversed rugged trails in the Lake District National Park in Cumbria, England, which is a UNESCO World Heritage site. Chris acquired her disability after a fall while hiking in her home state of Colorado in 2016, when a spinal cord injury left her paralyzed from the chest down. She went on to win the Ms. Wheelchair Colorado title in 2020, and she is both an active athlete and advocate for accessibility and inclusion in the outdoors and everywhere else. Daniel became paralyzed after complications from spinal surgery following a fall down an escalator. After recovering, he became active in the British charity organization Sportability, which supports paralyzed athletes’ participation in sports – from archery and quad biking, to tennis and flying light aircraft. Now an experienced adaptive hiker, he competed in the Race The Sun fundraiser in the Lake District National Park. We recorded our interview with Chris and Daniel in March, as Daniel was preparing to hike the West Highland Way trail in Scotland. Just this week, Daniel successfully completed that trail, along with ten support volunteers from around the world. Daniel is the first person in a wheelchair known to have successfully completed this historic 96-mile trail. He made the trek as a fundraiser for BackUp, a UK organization supporting people with spinal cord injuries.…

Disability Rap

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A Woman’s Unusual Journey to Leave a Hospital 29:36

for 1 year siden29:36

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Hospitals don’t generally sue patients for trespassing, but that is what happened to Alexis Ratcliff. Alexis is 18 years old and has lived in a hospital in Winston-Salem, North Carolina since she was 13. Last year, the hospital sued Alexis for trespassing to try and force her to move out. Alexis wants to leave the hospital, too, just not where the hospital wanted her to go. Alexis wants to live in her own home with support from caregivers. She wants to live close to family and friends. The hospital, Atrium Health Wake Forest Baptist, wanted to transfer Alexis to a nursing home in another state. Alexis, who won a full academic scholarship to a nearby college and started classes there this fall, is saying no. On today’s episode of Disability Rap, we speak with Alexis Ratcliff. Alexis is a quadriplegic who uses a wheelchair to get around and a ventilator to help her breathe. She acquired her disability as a result of a car accident when she was 18 months old. We are also joined by Lisa Nesbitt. Lisa is a Supervising Attorney at Disability Rights North Carolina, and she’s part of the team working on Alexis’s case.…

Disability Rap

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Celebrating National Cerebral Palsy Awareness Month 49:26

for 1 year siden49:26

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In honor of National Cerebral Palsy Awareness Month this March, FREED Center for Independent Living partnered with the California Department of Rehabilitation to host a live recording of the Disability Rap radio show and podcast. The show featured a panel discussion focusing on the transition from youth to adulthood for people with cerebral palsy. Our panelists shared their stories of growing up with CP and the choices, obstacles, and opportunities they faced as they entered the workforce. The panel was moderated by Ana Acton, former Executive Director of FREED and Host of Disability Rap, now the Deputy Director of the Independent Living and Community Access Division at the California Department of Rehabilitation. Click here to watch the recording of the show. Special thanks to Ana Acton and the California Department of Rehabilitation for their partnership in hosting this event with FREED!…

Disability Rap

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Valentine’s Day 2024 with Dan and Viola Dwyer 32:07

for 1 year siden32:07

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On this Valentine’s Day, we’re joined once again by Dan and Viola Dwyer, creators of the YouTube channel The Ginchiest , for a conversation about what makes their relationship work, how they’d like to see disability and relationships portrayed in popular culture, and what still needs to be done for greater media representation and disability marriage equality. When Dan was nine, he acquired a traumatic brain injury caused by a hit and run accident. Dan attended Widener Memorial School in Philadelphia with other children with disabilities. He then studied at Edinboro University, where he studied Political Science and pursued a career in government. Viola was born with Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease. She also attended Widener Memorial School in Philadelphia. Viola attended Johns Hopkins University where she studied Entrepreneurship and International Relations and pursued a career in financial services. After working in different roles in the financial services industry, Viola decided to return to school and earned an MBA from Duke University.…

Disability Rap

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Announcement: Live Recording of Disability Rap on March 4! 0:52

for 1 year siden0:52

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In honor of National Cerebral Palsy Awareness Month this March, FREED Center for Independent Living is partnering with the California Department of Rehabilitation to host a live recording of the Disability Rap radio show and podcast. The show will feature a panel discussion focusing on the transition from youth to adulthood for people with cerebral palsy. Our panelists will share their stories of growing up with CP and the choices, obstacles, and opportunities they faced as they entered the workforce. The panel will be moderated by Ana Acton, former Executive Director of FREED and Host of Disability Rap, now the Deputy Director of the Independent Living and Community Access Division at the California Department of Rehabilitation. For more information and to register, go to https://www.disabilityrap.org/disability-rap-2024-03-live .…

Disability Rap

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From Patient to Chief: Dr. Michael Alexander 44:12

for 1 year siden44:12

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Today, we’re joined by Dr. Michael Alexander, retired Chief of Rehabilitation Services at the A.I. duPont Hospital for Children in Wilmington, Delaware. Dr. Alexander has a long history at duPont, starting when he first set foot in the hospital as a patient at age 12 after contracting polio. As a teenager, he spent summers as an inpatient at the duPont Hospital, forming relationships and community with other children with disabilities and with the doctors and nurses working there. With encouragement from the lead physician at duPont, he decided to go to medical school at the University of Virginia and enter the emerging field of Physical Medicine and Rehabilitation. After practicing in Ohio and Pennsylvania, Dr. Alexander returned to duPont, now the Nemours Children’s Hospital, as the Chief of Rehabilitative Medicine in 1986. He retired in 2013. Dr. Alexander is a leader in the field of pediatric rehabilitation. While at duPont Hospital, he pioneered family-centered care, bringing families of children with disabilities into the discussions and planning of their medical care and rehab. He facilitated the transition at duPont from mostly providing inpatient care to focusing on outpatients, providing children with disabilities and diseases the care and supports they need to live at home and participate fully in their community.…

Disability Rap

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For These ‘Long Haulers,’ Covid Is Still Taking a Toll 37:50

for 1 year siden37:50

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Today, we continue our coverage of the Covid-19 pandemic and the long-term impacts of SARS-CoV-2 on people’s health and everyday lives. We speak with two contributors to a new anthology by and for the Long Covid community. We in the disability community know that the pandemic is far from behind us in the United States. Although the numbers have significantly decreased from 2020 and 2021, people are still getting sick from the virus and some still need to be hospitalized. Although most people who contract SARS-CoV-2 fully recover, some people continue experiencing symptoms long after their initial Covid illness. A new anthology out last month explores the wide-ranging and often debilitating impacts long Covid can have on people’s lives. The Long COVID Reader is a collection of stories, essays, and poems from 45 long-haulers, as they call themselves. The collection draws works from established writers and poets such as Pato Hebert, Emily Pinkerton, Morgan Stevens, and Nina Storey, as well as from people in other professions. The book reflects broad demographics, diverse skill sets, underrepresented voices, and those with little writing experience. We’re joined by two guests. Mary Ladd is the long-hauler publisher, founding editor, which published The Long COVID Reader. She has written for the San Francisco Chronicle, Playboy Health, and Wildfire Magazine. She’s based in the Bay Area. Jessica B. Sokol is also with us. Jessica believes Covid-19 hit her in February 2020. She survived intubation on a ventilator. Her first book, For Better and Worse, was published in 2016. Her stories are featured in Dorothy Parker’s Ashes, Music Museum of New England, Forbes Library, and Valley Love Letters project in Northampton, Massachusetts. Her essay, Three Years and Counting, is included in The Long COVID Reader. Click here to watch the book launch event from Green Apple Books.…

Disability Rap

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Candis Welch, Ms. Wheelchair California 2023 29:21

for 1 year siden29:21

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We're joined today by Ms. Wheelchair California 2023 Candis Welch. Much more than a beauty queen, Candis is on a mission to bring equitable inclusion to all communities. In our interview, about her work as an advocate, her advice for disabled people pursing a college education, and her favorite disability representation on TV. At 18 months, Candice was diagnosed with Spinal Muscular Atrophy. This is a genetic muscular disability that affects the central nervous system. She has her B.A. in Journalism with an emphasis in Public Relations and a minor in Psychology. She also has her master's in public administration from California State University, Northridge. She recently attended Cornell University where she received a certificate in Diversity, Equity, and Inclusion. She is an advocate for the disabled community and serves on multiple committees to bring awareness to the public on what the disability community experiences and needs.…

Disability Rap

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Voters Sue 3 Alabama Counties for Failure to Provide Accessible Absentee Voting Methods 30:00

for 1 year siden30:00

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Today, we turn to Alabama, where people with disabilities are suing three counties in that state for failure to provide an absentee voting option that is fully accessible for blind voters and other voters with disabilities. The lawsuit, filed earlier this month by four individuals and the National Federation of the Blind of Alabama, alleges that the counties are violating the rights of blind voters and other voters with disabilities by failing to provide them with accessible means to mark and return their absentee ballots. We’re joined by two guests. Dr. Eric Peebles is one of the named plaintiffs in this Alabama lawsuit. He currently serves as executive director of Accessible Alabama, an organization that works to increase accessible housing options in communities for people with disabilities and those facing growing limitations as they age. He has a PhD in rehabilitation from Auburn University. Eric has spastic cerebral palsy because of an oxygen deprivation during birth. This trauma has severely limited his motor skills to the point of functional quadriplegia. We’re also joined by Bill Van Der Pol, senior trial counsel at the Alabama Disabilities Advocacy Program. Bill is one of the attorneys representing the plaintiffs in the absentee voting lawsuit.…

Disability Rap

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2022 Berkeley City Council Candidate Michai Freeman 30:00

for 2 years siden30:00

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We are joined today by Michai Freeman, a Systems Change Advocate at the Center for Independent Living in Berkeley, California. When she was young, Michai developed a neuromuscular disease. Originally from New York, she spent her formative years in Brooklyn and had to be bussed to a community two hours away from her home to attend a school for the disabled. At that time, in the 1970s, children with disabilities were not admitted to the school closest to her home. In 1989, Michai came to California to attend the University of California Berkeley. She studied abroad for a year in Egypt and then received her master’s in Holistic Studies with a specialization in nutrition from John F. Kennedy University. She ran for Berkeley City Council in 2022. While she did not win in that election, she continues to advocate for the disabled in her communities.…

Disability Rap

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Jennifer Gasner’s ‘Unexpected Life’ with Friedreich’s Ataxia 29:59

for 2 years siden29:59

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We are joined today by author Jennifer Gasner. At the tender age of 17, Jennifer was diagnosed with Friedreich’s Ataxia, a rare progressive neuromuscular disease. In her new book, My Unexpected Life: Finding Balance Beyond My Diagnosis , she delves into what it was like to start college with this new diagnosis and how she initially coped with her changing body. Turning to alcohol and getting involved in a toxic relationship were ways she could escape what she was feeling inside. Through a friendship with the hit singer songwriter Dave Matthews, Jennifer realized that even though her life had taken an unexpected turn and she was now a wheelchair user, her life was not over.…

Disability Rap

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Embodied Inclusion with Andrew Golibersuch 29:52

for 2 years siden29:52

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Today, we’re joined by Andrew Golibersuch, an artist, activist, dancer, and founder of Embodied Inclusion , a project designed to help organizations, communities, and institutions become more inclusive and welcoming to all. In our interview, Andrew shares his journey as a disabled dancer and how his experiences in dance led him to create his Embodied Inclusion workshops, where participants learn what each of us needs to feel comfortable inhabiting space with themselves and others. Andrew is a mental health counselor and art therapist based in western Massachusetts.…

Disability Rap

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Extended Version of Greg Marshall's Interview 51:35

for 2 years siden51:35

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This is an extended version of our interview with Greg Marshall . Today, we’re joined by someone who has had cerebral palsy since he was born, but no one ever told him that he had CP or even that he had a disability. It was not until Greg Marshall was in his early thirties and applying for private health insurance for the first time that he learned, through a review of childhood medical records, that he actually had cerebral palsy. Up until that point, he just thought he had tight tendons, which was the line his parents used to explain why his feet and legs didn’t work like other kids his age. Greg Marshall takes us on a journey of discovery in his new book, Leg: The Story of a Limb and the Boy Who Grew From It . It’s a memoir not only about learning he had CP, but about a mom who fights cancer, a dad who gets diagnosed with ALS, and a sister on the autism spectrum. And it’s a coming out story: coming out as gay at age 19, and then coming out as disabled in his early thirties. The book is poignant and also incredibly funny and tells this unique story of a kid who grew up in a small town in Utah where the only person who didn’t know he had a disability was himself. In our interview, Greg Marshall tells us about growing up not knowing he had a disability and the impact this had on his relationships with family, partners, and most importantly, himself. Coming out as gay helped him to come out as disabled when he discovered his diagnosis of cerebral palsy in his thirties. Greg reflects on his family dynamics and caregiving, how disability made him a better lover, and how he shifted the self-critical voices of internalized ableism to a more gentle and accepting narrative embracing his many identities.…

Disability Rap

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Greg Marshall’s Discovery of His ‘Leg’ 28:58

for 2 years siden28:58

28:58

Today, we’re joined by someone who has had cerebral palsy since he was born, but no one ever told him that he had CP or even that he had a disability. It was not until Greg Marshall was in his early thirties and applying for private health insurance for the first time that he learned, through a review of childhood medical records, that he actually had cerebral palsy. Up until that point, he just thought he had tight tendons, which was the line his parents used to explain why his feet and legs didn’t work like other kids his age. Greg Marshall takes us on a journey of discovery in his new book, Leg: The Story of a Limb and the Boy Who Grew From It . It’s a memoir not only about learning he had CP, but about a mom who fights cancer, a dad who gets diagnosed with ALS, and a sister on the autism spectrum. And it’s a coming out story: coming out as gay at age 19, and then coming out as disabled in his early thirties. The book is poignant and also incredibly funny and tells this unique story of a kid who grew up in a small town in Utah where the only person who didn’t know he had a disability was himself. In our interview, Greg Marshall tells us about growing up not knowing he had a disability and the impact this had on his relationships with family, partners, and most importantly, himself. Coming out as gay helped him to come out as disabled when he discovered his diagnosis of cerebral palsy in his thirties. Greg reflects on his family dynamics and caregiving, how disability made him a better lover, and how he shifted the self-critical voices of internalized ableism to a more gentle and accepting narrative embracing his many identities.…

Disability Rap

1
Life with a Traumatic Brain Injury 29:41

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29:41

Here at FREED we’ve recently restarted our Traumatic Brain Injury program, and while providing those services and supports in the community, we began hearing more and more stories about life with a TBI. According to the Brain Injury Association of America, 1 in 60 Americans are living with a permanent brain injury, and 2.8 million TBIs occur every year in the United States alone, and while there are common experiences among those living with TBI, we know – like all disabilities – their journeys are as unique as the people living them. Today we are joined by Barb Foy and Calvina McEndree, who both live with TBIs to share their experiences of having a TBI, how it shapes their present and their outlook on the future.…

Disability Rap

1
Ryan Prior on the Covid-19 ‘Long Haul’ 29:59

for 2 years siden29:59

29:59

As the death toll from Covid-19 quickly rose throughout the United States and around the world in early 2020, many health officials, politicians, and media personalities had one clear message about those who contracted Covid-19: For those who didn’t die from the infection, it would be a simple respiratory illness and patients would fully recover in a matter of weeks. But for millions of people around the world, they didn’t fully recover after contracting SARS-Co-V-2; their symptoms lasted for months or years, often with no signs of easing up. This was not well understood by the medical community, and so it was patients who banded together, often online, to support each other and raise awareness of a condition that they themselves termed, “Long Covid.” This is the subject of a new book by our guest today, Ryan Prior. In The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever , Ryan documents the journey that people with Long Covid embarked on to advocate for recognition and understanding of this new condition in the medical community. He also shows how that advocacy was influenced heavily by those with another condition called myalgic encephalomyelitis, also known as chronic fatigue syndrome or ME/CFS. Writing from personal experience as someone who developed ME/CFS in high school, Ryan presents the similarities between ME and Long Covid, how they are both generally misunderstood by the medical profession, and how patients themselves were often on the front lines of understanding their own conditions and educating their doctors. He also connects these patient-led movements to the Disability Rights Movement of the 1970s and 80s and continuing today, and encourages the movements to unite around common goals. Ryan Prior is currently a journalist-in-residence at The Century Foundation. He has been a health and science writer for CNN since 2015 and has also written for The Guardian, the Daily Beast, USA Today, STAT News, and Business Insider.…

Disability Rap

1
Rebroadcast: CalOES's Vance Taylor on Emergency Preparedness 30:02

for 2 years siden30:02

30:02

Vance talks with us about the intersection of personal preparedness and community resilience and about the future of disaster management.

Disability Rap

1
Self-Acceptance and Inclusion: A National Disability Awareness Month Special 30:00

for 2 years siden30:00

30:00

We mark National Disability Awareness Month by chatting with our FREED colleagues about the journey of self-acceptance as people with disabilities and the pride they feel as part of the disability community. Our guests share what it means to have disability pride in a world where we are still fighting for awareness and inclusion, and they discuss the importance of people with disabilities supporting each other. We’re joined by Brian Snyder, FREED’s Emergency Preparedness Coordinator, Lindsay Wells, our Information and Referral Specialist, and Jennique Lee, the Program Manager for our Yuba City office. We also mark the passing of legendary disability rights activist Judy Heumann, who died on Saturday at the age of 75.…

Disability Rap

1
The Future of Robotics in Disability Aides 30:00

for 2 years siden30:00

30:00

On today’s show, we’re joined once again by Dan and Viola Dwyer, creators of the YouTube channel, The Ginchiest . We invited Dan and Viola back to discuss personal care and how they see robotics playing a role.

Disability Rap

1
Social Security Increases and Medi-Cal Expansion 29:58

for 2 years siden29:58

29:58

In October, the Social Security Administration announced that it would institute an 8.7 percent increase in all Social Security cash benefits and Supplemental Security Income. This cost-of-living adjustment, or COLA, which takes effect this month, is meant to counter the soaring cost of everyday expenses due to inflation. For people on fixed income, as many people who receive Social Security or SSI are, this increase will help them continue to put food on their table and pay their bills. This is Social Security’s largest COLA increase since 1981 and it will impact over 72 million Americans. This got us thinking about other government benefit programs here in California that are either increasing benefits and services for people with disabilities and older adults or expanding eligibility criteria to enable more people to qualify. One example is Medi-Cal, California’s Medicaid program. In July 2022, the state increased the asset limit for Medi-Cal from $2,000 to $130,000 for individuals and from $3,000 to $195,000 for a couple, and in 2024, these Medi-Cal asset limits will be eliminated entirely. We also saw the state expand Medi-Cal eligibility to some undocumented immigrants here in California last year. To talk more about these changes and the impacts they will have on people with disabilities and older adults, we’re joined by a roundtable of guests. Ted Mumford is a staff attorney with Legal Services of Northern California, an organization that provides free legal services to qualifying low-income individuals with the goal of empowering them to identify and defeat the causes and effects of poverty. And we’re also joined by Denise Miller and Samuel Jain from Disability Rights California, the protection and advocacy organization for people with disabilities in the state.…

Disability Rap

1
Celebrating the 50th Anniversary of the First Center for Independent Living 29:55

for 2 years siden29:55

29:55

On today’s show, we celebrate the 50th anniversary of the first Independent Living Center in the world, founded in 1972 by UC Berkeley students. Joe Xavier, Director of the California Department of Rehabilitation, tells us how California is leading the way in creating a more accessible, equitable workforce, and why that matters to people with disabilities across the state. Former US Congressmember Tony Coelho talks about how growing up with a disability led him to sponsor the ADA. And we hear voices from the Independent Living Street Festival in Berkeley on October 22.…

Disability Rap

1
Samuel Habib's 'My Disability Roadmap' 30:01

for 2 years siden30:01

30:01

Transitioning from high school to adulthood is a big deal – even more so for young people with disabilities. Not content with merely trailblazing an accessible future, Samuel Habib decided to create a documentary film about his journey. On today's show, we hear from Samuel and his co-director, Dan Habib, about their film, My Disability Roadmap , and their hopes for the future.…

Disability Rap

1
Voting Access Across the Country 30:02

for 3 years siden30:02

30:02

With the midterm elections five weeks away, we spend today’s show looking at voting access for people with disabilities across the country. People with disabilities make up one fifth of the US population, or roughly 66 million people, and yet only 17.7 million people with disabilities voted in this country in 2020. While that was a significant increase over 2016, we wanted to find out what some of the main barriers are that people with disabilities face when trying to exercise our right to vote. We’ll look right here in California and also look at Texas and Wisconsin, where recent laws and court orders have restricted access to the ballot box for voters with disabilities. We're joined by a roundtable of guests from across the country. Lilian Aluri, REV UP Voting Campaign Coordinator at the American Association of People with Disabilities. Michelle Bishop at the National Disability Rights Network. Molly Broadway, Training and Technical Support Specialist, Disability Rights Texas. Barbara Beckert, Director of External Advocacy, Disability Rights Wisconsin. Bill Crowley, Supervising Attorney, Disability Rights Wisconsin. Gabe Taylor, Voting Rights Senior Advocate, Disability Rights California.…

Disability Rap

1
CalOES's Vance Taylor on Emergency Preparedness 29:58

for 3 years siden29:58

29:58

As we enter fire season here in the Sierra Nevada foothills, we spend today’s show with L. Vance Taylor, who leads the Office of Access and Functional Needs in the California Governor’s Office of Emergency Services. We invited Vance on the show to talk about how the increasing risk of wildfire and other natural disasters here in California is impacting people with disabilities and others with access and functional needs. We’ll also hear what CalOES is doing to support our community before, during, and after emergencies. Vance Taylor is a San Francisco Bay Area native. He was diagnosed with muscular dystrophy as a child and uses a power wheelchair. He has worked in Washington, D.C. as an advisor for two different members of Congress, has directed security policy at the Association of Metropolitan Water Agencies, and has been a principal with Catalyst Partners, LLC. He is currently based in Rancho Cordova, California.…

Disability Rap

1
Celebrating Disability Pride 29:36

for 3 years siden29:36

29:36

July was Disability Pride Month, and to celebrate, we bring you a conversation between two women executives with significant disabilities at the California Department of Rehabilitation (DOR). Ana Acton, the former Executive Director of FREED and former Disability Rap host, is now DOR’s Deputy Director of Independent Living and Community Access Division. Last month, she sat down with Kim Rutledge, the Deputy Director of Legislation and Communications at DOR, for a wide-ranging conversation about disability, disability pride, and self-acceptance. This month on Disability Rap, we air an extended version of their conversation.…

Disability Rap

1
Inclusivity in the California Court System 28:54

for 3 years siden28:54

28:54

Today, we're joined by Sacramento County Superior Court Judge Andi Mudryk, the first openly transgender person in California history to be appointed by a governor to a seat on the California bench. Disability Rap listeners may remember that Andi joined us on the show last year when she was Chief Deputy Director of the California Department of Rehabilitation. In that interview , we talked with Andi about her career in civil rights law, primarily focusing on advocacy for people with disabilities, as well as her personal experiences as someone with a physical disability. On this episode of Disability Rap, Judge Andi Mudryk speaks to us about the intersection of LGBTQIA+ Pride and Disability Pride and about how representation in the courts builds trust with communities and helps create a more just and equitable future.…

Disability Rap

1
California’s Voice Options Program 29:56

for 3 years siden29:56

29:56

On today’s show, we focus on resources here in California for people who are unable to speak or whose speech may be difficult to understand. Through the Voice Options program, eligible Californians who are unable to speak or who have difficulty speaking can receive a free speech-generating device. They can also test out various speech-generating apps in order to know which app is best for them. We’re joined by a roundtable of guests with deep knowledge in this area. Tim Burkhart, Elizabeth Wood and Megan Sampson are with us. They are with the Voice Options Program at the California Department of Rehabilitation. FREED is one of 24 Voice Options providers in the state. And Annette Seabury is also with us. Annette is one of FREED’s Assistive Technology Specialist and coordinator of the Voice Options program at FREED. She is a Speech-Language Pathologist with a long history of working with assistive technology, particularly in schools.…

Disability Rap

1
The Future of Transportation for People With Disabilities 29:53

for 3 years siden29:53

29:53

Today, a follow-up on our January show looking at transportation challenges and opportunities for people with disabilities. We’re joined by Prashanth Venkataram. Prashanth is a postdoctoral researcher at the Institute of Transportation Studies at the University of California, Davis. In that role, he focuses on the state of current and future transportation systems for people with disabilities and what policies may lead to better outcomes for our community. He is currently co-facilitating a study looking at the needs, desires, and challenges that people with disabilities in California face with transportation and housing. Prashanth received a BS in physics from the Massachusetts Institute of Technology, and an MA and PhD in electrical engineering from Princeton University.…

Disability Rap

1
Calls to Expand Long Term Services and Supports in California and Nationwide 29:56

for 3 years siden29:56

29:56

Calls to expand Long Term Services and Supports are growing here in California, in Washington, D.C., and across the country. For people who may be unfamiliar with the term, Long Term Services and Supports, or LTSS, is an umbrella term that encompasses all the supports people with disabilities and older adults need in order to live independently in the community of their choice. Long Term Services and Supports include home health aides and personal care attendants, but LTSS also include services like medical and non-medical transportation, durable medical equipment, home modifications to make someone’s living space more accessible, and much more. In President Biden’s Build Back Better agenda that has been stalled in the Senate since last fall, he proposed investing $400 billion in the nation’s LTSS system. Washington State enacted a public LTSS insurance program in 2019, and momentum is growing here in California for universal LTSS for all people who need it in the state, regardless of income or assets. For more on the calls to expand Long Term Services and Supports, we’re joined by a roundtable of guests from the LTSS4All Grassroots Coalition, a cross-sector campaign for universal LTSS, representing people with disabilities, older adults, family caregivers and homecare professionals. Monique Harris and Carrie Madden are with us. Both Monique and Carrie receive In-Home Supportive Services, or IHSS, which is California’s Medicaid-funded homecare program. Monique is a graphic artist based in Emeryville, and Carrie is a (Systems Change Advocate) at Communities Actively Living Independent & Free, or CALIF, the independent living center in downtown Los Angeles. Allen Galleon is also with us. Allen is a homecare worker, family caregiver for his mother, and an organizer with the Pilipino Workers Center. And we’re joined by Kayla Shore, Southern California Research Manager & Organizer with Hand in Hand, The Domestic Employers Network. And we’re getting support today from Lindsay Imai Hong, the California Director of Hand in Hand, who will be revoicing for Monique.…

Disability Rap

1
Immunocompromised People Left Behind As Covid-19 Restrictions Are Lifted 29:56

for 3 years siden29:56

29:56

As mask mandates and other Covid-19 precautions are being relaxed across the country, we look at a group of people who are being left behind as the country races to return to a pre-pandemic normal. There are 7 million people in the US with compromised immune systems, making up just under 3% of the population. For many of these people, the risk of severe illness, hospitalization, and death from Covid-19 is substantially higher than it is in the general population, and since their immune systems are compromised, they are at much higher risk of contracting the virus, even if they are vaccinated and boosted. On the show, we hear what immunocompromised people are experiencing at this stage of the pandemic and hear what they are calling for now. We’re joined by Jillian Parramore, an educator, writer, speaker, and disability rights advocate based in southern California. She has a compromised immune system and other disabilities. Near the start of the pandemic, she was laid off from her job as a school district adviser because she couldn’t work in person. Jillian is a Board member of Disability Rights California . We’re also joined by Ed Yong, staff writer at The Atlantic. He recently wrote a piece headlined, The Millions of People Stuck in Pandemic Limbo: What does society owe immunocompromised people? In the article, he documents the challenges immunocompromised people are facing right now and amplifies their calls for systemic change. Ed Yong won the Pulitzer Prize for Explanatory Reporting last year for his coverage of the Covid-19 pandemic.…

Disability Rap

1
Disability and Climate Change 30:01

for 3 years siden30:01

30:01

On today's show, we focus on the intersection of disability and climate change and the disproportional impacts extreme weather can have on people with disabilities and older adults. We start local here in Nevada County and then zoom out for broader perspective and context. On December 26, Nevada, Placer, and El Dorado Counties were hit with a massive snowstorm, the likes of which we have not seen in recent memory. The snow caused downed trees and widespread power outages that affected over two-thirds of Nevada County, over 60,000 households. While some power was restored within a matter of days, other residents went one and two weeks without power. As we have discussed on this show before , Nevada County has, for better or worse, gotten used to Public Safety Power Shutoff events, when our power utility, PG&E, shuts off service to reduce the risk of wildfire. Usually, these events last between two and four days, not two weeks as was the case with this snowstorm. People with disabilities and those who use life-sustaining medical devices were significantly impacted by this storm. We’re joined by Cathleen Parsons, a FREED consumer who had to evacuate during the storm. We’re also joined by Alex Ghenis, the founder of Accessible Climate Strategies . Alex is a climate resilience and disability rights researcher and advocate, dedicated to safeguarding the well-being of people with disabilities in a changing world.…

Disability Rap

1
Transportation Challenges and Opportunities for People with Disabilities 29:59

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29:59

On this episode of Disability Rap, we hear from YouTube personalities Dan and Viola Dwyer, creators of The Ginchiest , a series of videos highlighting their lives as people with disabilities who envision a society where differences are intriguing and accepted, not shameful and feared. Dan and Viola discuss the opportunities and challenges of transportation for people with disabilities. They share their experiences with both public and commercial transit, as well as wheelchair accessible personal vans. Disability Rap listeners may remember Dan and Viola from our February 2021 show , when we did a Valentine’s Day special. Dan and Viola are a married couple living just outside of Philadelphia, Pennsylvania. In 2020, they started a YouTube channel called The Ginchiest , where they talk about disability experiences and what these experiences teach people about being human. They are working to create a society where differences are intriguing and accepted, not shameful and feared. In addition to their work on The Ginchiest, Viola is now a lead recruiter at La Jolla Logic. She was born with a genetic neuromuscular disease called Spinal Muscular Atrophy. She grew up using a wheelchair and continues to do so today. Dan was in a hit and run accident at the age of nine that left him in a coma for three months and resulted in a traumatic brain injury that he lives with today.…

Disability Rap

1
Nevada City’s Neighborhood Center of the Arts 29:59

for 3 years siden29:59

29:59

We spend today’s show with Amee Medeiros, the Executive Director of Neighborhood Center of the Arts , a nonprofit in Nevada City that supports people with intellectual and developmental disabilities to make and sell art. Amee tells us how Neighborhood Center has been supporting their artists remotely through the pandemic and shares her vision for the center going forward. In non-pandemic times, Neighborhood Center of the Arts is a working studio for artists with intellectual and developmental disabilities. They offer classes and workshops in woodshop, ceramics, photography, weaving, mixed-media and visual arts, digital arts, and more. The mission of the program is to enable artists with disabilities to create and sell their art. 50% of the artwork sales goes to the artists themselves to supplement their income, and the other 50% goes back into running the center. In March of 2020, like so many other programs and nonprofits, Neighborhood Center of the Arts had to pivot and reorient in this time of the coronavirus pandemic, closing their physical doors for a time but continuing to support and create spaces for artists to make and sell their work. We’ve invited Amy back on Disability Rap to give us an update on the program and tell us where Neighborhood Center of the Arts is heading.…

Disability Rap

1
Ford Foundation’s Rebecca Cokley on the Infrastructure Bill and the State of the Disability Rights Movement 29:36

for 3 years siden29:36

29:36

As Congress and the White House actively negotiate the terms of the Build Back Better package, we spend today’s show with Rebecca Cokley, a Program Officer in the President’s Office at the Ford Foundation, where she develops the US disability rights program strategy for the Foundation. On the show, Rebecca provides analysis on how some of the proposed elements of the Build Back Better package would greatly improve the lives of people with disabilities in this country. She also tells us about her ground-breaking work at the Ford Foundation, supporting disability rights and justice initiatives throughout the United States. Disability Rap listeners may remember that we had Rebecca on the show one year ago, right before the November 2020 Presidential Election. At that time, Rebecca was a senior fellow at the Center for American Progress Action Fund. Click here to listen to that interview. Previously, Rebecca served as the executive director of the National Council on Disability, an independent agency charged with advising Congress and the White House on issues of national disability public policy. She also served in the Obama Administration for four years, including time at the Department of Education and the Department of Health and Human Services, as well as a successful stint at the White House where she oversaw diversity and inclusion efforts. Rebecca got her feet wet in advocacy while working at the Institute for Educational Leadership, where she built a number of tools and resources designed to empower and educate youth with disabilities and their adult allies. Rebecca is a California native, growing up in the Bay Area during the heart of the Independent Living Movement.…

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