Heart To Heart Navigating Lipedema Together podcast

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Self-Love, Healing, and the Power of Visualization with Heddy Pugh 34:31

for 7 weeks siden34:31

34:31

In this Heart to Heart conversation, Dr. Catherine Seo is joined by Immersive Coach & Guided Meditation Facilitation Heddy Pugh for a profoundly moving discussion on healing, self-reflection, and reclaiming personal power. Heddy shares her journey of overcoming adversity, discovering immersive coaching, and using guided meditation for self-awareness and transformation. She discusses the connection between trauma and Lipedema, the challenges of visibility and self-acceptance, and the power of visualizing the life you want to create. This episode includes a guided visualization exercise to help listeners slow down, connect with themselves, and set intentions for self-care. Mentioned in this episode: Heddy Life https://www.heddy.life/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Larger Luxury: Redefining Spa & Wellness for All Bodies 42:48

for 8 weeks siden42:48

42:48

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre are joined by Sherilyn Trompetter and Sky Mclaughlin, founders of Larger Luxury, a movement dedicated to making luxury spa experiences truly inclusive. If you’ve ever questioned whether luxury and self-care are for you, this conversation will open your eyes to the systemic barriers that keep many people—especially those with Lipedema—from accessing the rest and rejuvenation they deserve. Sherilyn and Skye share their personal experiences and the driving force behind their mission to certify spas and wellness spaces that cater to all body sizes, from ill-fitting robes to inaccessible treatment spaces. Together, we unpack the realities of fat bias, the emotional toll of exclusion, and the power of reclaiming space. Whether you have Lipedema, love someone who does, or simply want to be part of a more inclusive world, this episode is a must-listen. Mentioned in this episode: Larger Luxury https://www.largerluxury.com/courses/larger-luxury Lipedema Fitness http://www.lipedemafitness.com/home.html This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Breaking Barriers: NIH’s New Commission on Lymphatic Diseases & Lipedema Advocacy 32:58

for 9 weeks siden32:58

32:58

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre discuss a historic milestone: the National Institutes of Health (NIH) has established the National Commission on Lymphatic Diseases. As invited representatives, Lisa and Catherine will share their personal journeys as patients and advocates, ensuring that the realities of living with lipedema and lymphatic diseases are heard at the highest levels. They break down what this means for the future of research, treatment, and awareness—and how YOU can get involved. Learn how Lisa and Catherine are bringing patient voices to the NIH and what this means for the future of lipedema care. Mentioned in this episode: National Institute of Health National Commission on Lymphatic Diseases https://www.nhlbi.nih.gov/advisory-and-peer-review-committees/national-commission-lymphatic-diseases This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Navigating Work, Life, and Lipedema: Giving Yourself Grace in the Unexpected 34:39

for 10 weeks siden34:39

34:39

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre dive into the real-life challenges of balancing work, life, and health with Lipedema. They share personal experiences of navigating unexpected shifts, from last-minute schedule changes to making difficult decisions around priorities. Lisa opens up about the emotional impact of her postponed surgery and the importance of community support in times of uncertainty. Catherine reflects on a past regret that shaped her approach to prioritization and self-care. Together, they discuss how trust, flexibility, and self-compassion play crucial roles in both professional and personal spaces—whether it’s rescheduling a live event, setting boundaries at work, or choosing to rest when needed. This episode is a powerful reminder that life happens—and how we respond to it matters. How do we advocate for ourselves? How do we create work environments that honor our realities? Tune in for an honest, heartfelt conversation filled with insights on self-advocacy, burnout prevention, and embracing what truly matters. Tune in for a heartfelt conversation on navigating life’s curveballs with grace—listen now! This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Lipedema Diagnosis & Treatment: A Conversation with Dr. Matthew Carmody 27:43

for 11 weeks siden27:43

27:43

In this Heart to Heart conversation, Dr. Catherine Seo welcomes special guest Dr. Matthew Carmody, a seasoned internist and associate professor at Harvard Medical School, to explore the evolving understanding of lipedema and the latest medical guidelines. Dr. Carmody shares his journey in researching and treating lipedema, emphasizing the critical role of patient advocacy and collaboration in achieving accurate diagnoses and effective treatment plans. He discusses the challenges of differentiating lipedema from obesity, the importance of understanding inflammation and fluid retention, and how medical systems can improve their approach to this often misunderstood condition. Catherine and Dr. Carmody delve into the recently updated German guidelines on lipedema, which set new standards for diagnosis and treatment. They explore the effectiveness of manual lymphatic drainage, compression therapy, and dietary interventions in managing symptoms. Additionally, they highlight the importance of mobility, whether through walking or water-based exercises, to help improve circulation and reduce discomfort. With decades of experience, Dr. Carmody underscores the need for physicians to trust patients’ lived experiences and for individuals with lipedema to advocate for themselves within the healthcare system. This conversation sheds light on the complexities of lipedema and offers actionable insights for those navigating their own medical journeys. Tune in to learn from Dr. Carmody’s expertise and gain valuable insights into the latest advancements in lipedema care. This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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When Lipedema Reduction Surgery Is Delayed: Lisa’s Story of Strength and Resilience 38:29

for 12 weeks siden38:29

38:29

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre dive into the realities of unexpected medical setbacks, resilience, and the power of reframing adversity. Lisa had spent years preparing for lipedema reduction surgery in Germany, only to have it postponed at the last moment due to medical concerns. In this deeply personal conversation, she opens up about the shock, grief, and disappointment of having her plans abruptly halted—and how she’s finding the strength to move forward. Catherine and Lisa explore the intersection of obesity, lipedema, and systemic medical biases, discussing the emotional and financial toll of seeking treatment. Lisa reflects on the extensive preparation she undertook, from mental and physical conditioning to financial planning, and how she’s now focusing on optimizing her health for future surgery. Through candid reflections and heartfelt moments, Lisa reframes this delay as a 'not now' rather than a definitive 'no.' She shares her new strategy, which includes starting GLP-1 injections, intensifying her physiotherapy and manual lymphatic drainage (MLD) routine, and incorporating compression therapies. Most importantly, she emphasizes the role of self-compassion and the need to challenge outdated narratives around weight, health, and self-worth. Lisa’s story is one of perseverance, adaptability, and the unwavering support of the lipedema community. Whether you’ve faced a similar obstacle or are looking for inspiration in the face of adversity, this episode offers powerful insights and encouragement. Tune in to hear Lisa’s story and gain insights on navigating medical setbacks with strength and self-compassion. This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Reclaiming Body Peace at Work with Nina Manolson 42:32

for 23 weeks siden42:32

42:32

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre are joined once again by Nina Manolson, Body-Peace Coach and poet, for part two of a deep dive into transforming our relationship with our bodies. This episode continues exploring how to shift from managing and controlling our bodies to cultivating a compassionate, nurturing relationship with them. In this follow-up episode, Nina Manolson shares her insights on the cultural expectations that lead many women to feel the need to “master” their relationship with their bodies. Lisa and Catherine discuss how this controlling mindset can create a disconnect between oneself and their body, leading to shame, self-criticism, and feelings of inadequacy. Nina reframes this concept by introducing the idea of building a "relationship" with our bodies that is grounded in kindness, care, and self-acceptance. Throughout the episode, Catherine, Lisa and Nina dive into the power of words and how language can shift our self-perception. Nina encourages listeners to replace negative, judgmental words with those that honor and appreciate our bodies. Lisa shares a personal story of embracing her needs with a client, and how expressing her challenges with Lipedema led to a transformative moment of support and allyship. Nina also shares her poem, "I Need to Bathe in These Words," inviting listeners to consider words that nurture their bodies rather than tear it down. Her poetic reflections encourage women to explore the language they use about themselves and create a vocabulary that promotes healing and self-compassion. This episode offers an inspiring and compassionate dialogue that will leave you thinking differently about how you relate to your body. Tune in to gain insights on body peace, advocacy, and nurturing self-compassion. If you or someone you know is on a journey with lipedema or other chronic conditions, this conversation is a must-listen! Mentioned in this episode: Nina Manolson's Freebies Body Poems by Nina Manolson Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Building Body-Peace While Living with Lipedema with Nina Manolson 43:12

for 24 weeks siden43:12

43:12

In this episode of Heart to Heart: Navigating Lipedema Together , Dr. Catherine Seo engages in a profound conversation with special guest Nina Manolson, a renowned Body-Peace coach, speaker, and nutrition therapist. Nina brings over 30 years of experience helping women cultivate a positive relationship with their bodies, and in this episode, she shares her expertise in transforming body-shame into Body-Peace. The discussion focuses on how individuals living with chronic conditions like Lipedema and Lymphedema can practice body compassion, shifting away from the control and frustration often associated with body management. Nina's unique Body-Peace approach empowers listeners to step into a compassionate, nourishing, and trusting relationship with their bodies. Together, Catherine and Nina explore the importance of body awareness, creating a self-care practice rooted in kindness, and listening to your body’s needs without judgment. Key Highlights: Discover the power of Body-Peace and how it can transform the relationship you have with your body. Learn practical steps for shifting from body-shame to compassion, especially when managing chronic conditions. Gain insights from Nina's decades of experience in nutrition therapy, coaching, and her deeply feminist, anti-diet approach. Understand the role of body mapping and self-awareness in promoting peace with your body. Tune in to this episode to learn how to practice self-compassion and create a more nourishing relationship with your body. Share this episode with others who may benefit, and explore Nina's free resources to deepen your connection with your body. Mentioned in this episode: Nina Manolson's Freebies Body Poems by Nina Manolson Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Advocating for Yourself at Work: Navigating Lipedema and Lymphedema with Dr. Leslyn Keith 37:55

for 25 weeks siden37:55

37:55

In this Heart to Heart conversation, Dr. Keith, OTD, CLT-LANA, Director of Research and Board President of The Lipedema Project, and Lisa Duerre dive into some of the most pressing questions faced by individuals living with lipedema and lymphedema. They tackle important issues such as how to advocate for yourself at work, particularly when navigating chronic health conditions, and offer strategies to find balance between managing your well-being and professional responsibilities. Lisa and Dr. Keith discuss how remote work can provide significant health benefits and how employees can confidently ask for support in their workplace. From setting up ergonomic workspaces to ensuring flexibility in schedules, they explore practical ways to enhance your quality of life while staying productive. They also share critical insights into overcoming workplace stigma and the importance of creating a supportive, inclusive environment. Key Takeaways: Effective ways to advocate for remote work and accommodations. How to manage chronic conditions like lipedema while maintaining your professional life. The impact of sleep, inflammation, and posture on productivity and overall health. Call to Action: Don’t miss this insightful episode that could change the way you approach self-care and advocacy at work. Whether you're navigating a chronic condition or supporting someone who is, this conversation is packed with actionable tips and heartfelt advice. Tune in now! Mentioned in this episode: Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Navigating Lipedema and Travel: How to Make Travel More Manageable 35:18

for 26 weeks siden35:18

35:18

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre discuss the often-overlooked realities of traveling with lipedema. They share practical strategies and firsthand experiences, addressing common travel concerns such as managing swelling during flights, finding accessible accommodations, and maintaining comfort on long journeys. Lisa shares her personal tips on packing medical supplies, choosing the right compression garments, and advocating for her needs while traveling. They also dive into the emotional side of travel—how to balance the desire for adventure with the physical challenges lipedema can present, and how to practice self-care along the way. Whether you're navigating airport security or seeking mobility support at your destination, this conversation offers empowering advice to help you travel with greater confidence and ease. If you or a loved one are living with lipedema and have questions about how to make travel more manageable, this episode is a must-listen. Mentioned in this episode: Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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How to Be Heard Without Screaming: Navigating Lipedema in the Workplace with Brenda Viola 44:26

for 27 weeks siden44:26

44:26

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre are joined by workplace culture expert Brenda Viola. Together, they explore how individuals with Lipedema can advocate for themselves and be heard in their professional environments—without feeling like they have to scream to be understood. Brenda offers actionable insights on effective communication, building rapport with colleagues, and fostering inclusive workplaces that are sensitive to hidden disabilities. Dr. Catherine Seo provides valuable perspectives on the challenges that arise when managing a condition like Lipedema in professional settings. She emphasizes the importance of self-awareness and self-compassion, reminding listeners that advocating for your health is not just a personal necessity but also a professional strength. Throughout the episode, Dr. Seo shares tips for setting boundaries and effectively communicating needs without fear or hesitation, drawing from both her personal and professional experience as an advocate for Lipedema awareness. Lisa Duerre adds to the conversation by sharing her own journey of balancing leadership with managing Lipedema, offering strategies that helped her find balance while leading a successful business. Whether you're living with Lipedema or working to create a more inclusive work environment, this episode delivers powerful insights for amplifying your voice without raising it. Ready to reclaim your voice at work without feeling the need to shout? Tune in to this empowering conversation for strategies that will help you advocate for yourself or support others with Lipedema in the workplace. This is a must-listen for anyone navigating hidden disabilities or seeking to create a more inclusive professional environment. Don’t miss out—your voice matters! Mentioned in this episode: Brenda Viola https://www.brendaviola.com/ How To Be Heard Without Screaming https://www.brendaviola.com/how-to-be-heard-without-screaming Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Lipedema Removal Surgery Simplified with Michelle Jaqua 43:11

for 28 weeks siden43:11

43:11

In this Heart to Heart conversation, Dr. Catherine Seo and Lisa Duerre are joined by Michelle Jaqua, a healthcare navigator and lead of Lipedema Simplified’s Surgery Simplified Concierge Program. Together, they explore the critical aspects of preparing for lipedema removal surgery, what patients need to know, and the steps involved in achieving the best outcomes. Michelle shares her expertise on the logistical, emotional, and practical considerations of surgery, including how the Surgery Simplified Concierge Program offers support to patients throughout their surgical journey. From the initial consultation to post-surgery care, Michelle provides invaluable insights into how to navigate the entire process. Lisa and Catherine also offer their personal reflections and experiences, bringing added depth to this important discussion. This conversation is essential for anyone considering lipedema removal surgery or supporting someone through it. Highlights from the Episode: What to expect when preparing for lipedema removal surgery Key considerations for selecting a surgeon and understanding your options The role of Lipedema Simplified’s Surgery Simplified Concierge Program in supporting patients Navigating pre-and post-surgical care: tips for recovery and long-term management Emotional and mental health preparation before surgery Mentioned in this episode: Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Workplace Advocacy and Lymphatic Care with Dr. Leslyn Keith 49:57

for 29 weeks siden49:57

49:57

In this heart to heart conversation Dr. Catherine Seo and Lisa Duerre are j oined by Dr. Leslyn Keith, OTD, CLT-LANA, a certified lymphedema therapist and Director of Research for The Lipedema Project. Together, they dive into the intersection of leadership, workplace advocacy, and lymphatic care, sharing insights on how to better support individuals living with hidden disabilities like Lipedema in professional settings. Dr. Keith, who has over 20 years of experience treating lymphatic and fat disorders, highlights the importance of accessible care and ongoing research in lymphedema and Lipedema management. She also emphasizes the role of workplace accommodations and the benefits of flexible work environments for those managing chronic conditions. Lisa Duerre reflects on her personal journey of leading in the tech industry while navigating Lipedema, offering practical insights on workplace advocacy for hidden disabilities and the critical role of well-being in leadership. Together, they explore strategies for building supportive workplace cultures that prioritize empathy, inclusivity, and mental health. Lisa also shares advice on preventing burnout, advocating for oneself, and the importance of flexibility for employees dealing with chronic illnesses. This episode underscores the shared commitment to leadership, advocacy, and creating workplaces that work for everyone. Dr. Seo, Lisa, and Dr. Keith encourage listeners to think critically about how leaders and organizations can better support employees with hidden health challenges. Mentioned in this episode: Lipedema Project Provider Directory: https://lipedemaproject.org/lipedema-lipoedema-lipodem-provider-directory/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

for 52 weeks siden33:05

33:05

Join Dr. Catherine Seo and Lisa Duerre on their inaugural livestream podcast episode as they embark on heart to heart conversations about navigating life with lipedema. Between Us: Navigating Lipedema Together offers a unique platform where personal stories and expert knowledge intersect, delving into the challenges, triumphs, and complexities of managing lipedema while balancing a full-time career. In this episode, Lisa and Catherine dive into candid conversations about workplace challenges, triumphs, and the intricacies of living with lipedema. They introduce their podcast as a space where listeners can gain insights, find support, and engage with a community that understands their experiences. Discover Catherine's transition into a quieter research role as retirement approaches, highlighting her unwavering dedication to raising awareness about lipedema. Learn about Lisa's new role as she takes on more visible leadership at Lipedema Simplified and RLD Group, leveraging her expertise in corporate culture transformation and inclusion to advocate for workplace accommodations and support for individuals with lipedema. Tune in as they celebrate a significant milestone – the imminent publication of a journal article, Proposed Research Case Definitions of Lipedema, which defines lipedema as a disease entity and features collaboration with leading medical professionals and researchers. Throughout the episode, they address crucial topics such as body image, internalized fatphobia, and workplace accommodations, emphasizing the vital role of community support. Don't miss the opportunity to join the conversation and share your own stories and insights with Lisa, Catherine, and the Lipedema Simplified TRIBE. Mentioned in this episode: Proposed Research Case Definitions of Lipedema https://www.liebertpub.com/doi/10.1089/lrb.2023.0062 Harvard Project Implicit https://implicit.harvard.edu/implicit/takeatest.html Aubrey Gordon https://www.aubreygordon.net/ Lipedema Simplified Calendar of Events: https://lipedema-simplified.org/events-calendar/ This episode is brought to you by: Lipedema Simplified: https://lipedema-simplified.org/ Lipedema Project: https://lipedemaproject.org RLD Group: https://rldgroupllc.com/…

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Heart to Heart Navigating Lipedema Together

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