Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join a ...
…
continue reading
Like a pink laser beam of insanity beaming straight into your brain hole, authors and longtime D**kHeads David Agranoff and D. Harlan Wilson break down each of Philip K. D**k's novels in order of publication with very little help from their engineer Langhorne J Tweed. Plus: Interviews. Story Vs. Film episodes. And other bits of PKD history. Support this podcast: https://anchor.fm/dickheadspodcast/support
…
continue reading
Losing weight is challenging and knowing how to keep it off is confusing. Everyone starts their “diet” on Monday and often break by Thursday because “stress” or health issues get in the way. If that sounds like you then meet Karina Rabin. She was born with a genetic kidney disease, ( PKD ), had 2 c-sections & shares with you how she got fit & healthy by eating real foods we all love. This podcast includes nutrition, meal prep, fitness, health, how to overcome the fear of carbs and how to hav ...
…
continue reading
Welcome to Growing Older, Living Younger, the podcast where you will discover ways to boost your metabolism, enhance your mental and physical energy, and ward off disorders we wrongly think are inevitable as we age. Hosted by Dr. Gillian Lockitch, former specialist in Medical Biochemistry, professor, researcher and international speaker, the show airs weekly every Monday. Each episode is a 30 - 45 minutes, exploring ways in which genetic and epigenetic (gene expression) science and medicine ...
…
continue reading
Having overcome a near-death experience, I decided to close my life coaching practice (accessible previously on this page) and place my health at the forefront of my journey. My focus has pivoted towards advocating not only for myself but also for others. While life coaching tips will still find their place in my content, my main emphasis is now on patient advocacy through sharing my story. Six months ago, I dove into a career in the AI field, aiming to improve my financial stability in the ...
…
continue reading
Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
…
continue reading
1
182 Thomas Weimbs PhD. From Lab to Life. Ketogenic Metabolic Therapy in Chronic Kidney Disease (CKD and PKD)
46:43
46:43
Spill senere
Spill senere
Lister
Lik
Likt
46:43
In EPISODE 182 OF GROWING OLDER LIVING YOUNGER, Dr. Thomas Weimbs and Dr. Gillian Lockitch discuss the prevalence and management of chronic kidney disease (CKD), which affects one in seven adults in the U.S. Dr. Weimbs highlights the importance of diet and lifestyle in managing CKD, particularly through ketogenic metabolic therapy. He explains that…
…
continue reading
1
181 Lynne Parmiter Bowman. Brownies For Breakfast!
44:36
44:36
Spill senere
Spill senere
Lister
Lik
Likt
44:36
In EPISODE 180 OF GROWING OLDER LIVING YOUNGER, Dr. Gillian Lockitch and Lynne Bowman discuss healthy aging and nutrition. Lynne, a multifaceted professional, shares her journey to writing "Brownies for Breakfast," a cookbook for diabetics. She emphasizes the importance of whole, real food, and plant-based diets, highlighting the need for practical…
…
continue reading
1
Spreading PAH Awareness featuring Steve Smith
25:38
25:38
Spill senere
Spill senere
Lister
Lik
Likt
25:38
In this episode of the podcast we speak to Steve Smith, a patient advocate who is living with Pulmonary Arterial Hypertension (PAH), a rare and progressive condition characterized by narrowing of the blood vessels in the heart and lungs. Steve is a college administrator and avid theater participant who uses his PAH story to connect with others, bel…
…
continue reading
1
180 Dr. Shai Efrati: Enhancing Potential Hyperbaric Oxygen Therapy
43:02
43:02
Spill senere
Spill senere
Lister
Lik
Likt
43:02
EPISODE 180 OF GROWING OLDER LIVING YOUNGER focuses on the transformative potential of targeted applications of hyperbaric oxygen therapy (HBOT) for enhancing brain health and slowing the aging process. Dr. Shai Efrati, a leading expert in HBOT, joins Dr. Gillian Lockitch to discuss how the therapy promotes neuroplasticity, aids in the treatment of…
…
continue reading
1
Optimizing Nutrition for PK Deficiency: A Patient & Dietitian's Perspective
37:49
37:49
Spill senere
Spill senere
Lister
Lik
Likt
37:49
…
continue reading
1
179 Lainne Love: Step Into Your Bigger Mission
37:54
37:54
Spill senere
Spill senere
Lister
Lik
Likt
37:54
EPISODE 179 OF GROWING OLDER LIVING YOUNGER focuses on releasing “stuck” trauma that holds you back from achieving your full potential and living a fulfilled life of purpose. I talk with author, award winning Spiritual Psychology Coach, Leading Edge Healer, CEO, and Momma, Lainne Love. Lainne posits that when trauma gets stuck in our bodies it caus…
…
continue reading
1
178: Andy Paige: Beat Ageism - Look Years Younger
38:07
38:07
Spill senere
Spill senere
Lister
Lik
Likt
38:07
EPISODE 178 OF GROWING OLDER LIVING YOUNGER focuses on how we can counteract ageism by manifesting our inner and outer beauty, to look and feel years younger than our chronological age. I talk with actress, author, entrepreneur and TV personality, Andy Paige. Andy is a beauty and style expert, and she shares insights on how we can let our inner bea…
…
continue reading
1
177 Dr. Brad Stuart. The End of Life - Not The End of Hope
46:42
46:42
Spill senere
Spill senere
Lister
Lik
Likt
46:42
In EPISODE 177 OF GROWING OLDER LIVING YOUNGER, Dr. Gillian Lockitch talks with Dr. Brad Stuart about his book "Facing Death: Spirituality, Science, and Surrender at the End of Life." Dr. Stuart discusses his transition from emergency medicine to hospice care, emphasizing how he came to realize the importance of healing over simply curing. He share…
…
continue reading
1
All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point
26:49
26:49
Spill senere
Spill senere
Lister
Lik
Likt
26:49
In this episode of the podcast we speak to Ashley Point, a patient advocate advocate whose son Davis was diagnosed with Koolen de-Vries Syndrome (KdVS) in 2016. She also serves as the president for both the Koolen de-Vries Syndrome Foundation and My Kool Brother, two non-profits that help to support families living with KdVS through advocacy, resea…
…
continue reading
1
176 Dr. Wayne Gradman. Don't Fall! The Fall Guy Tells You Why
38:27
38:27
Spill senere
Spill senere
Lister
Lik
Likt
38:27
EPISODE 176 oF GROWING OLDER LIVING YOUNGER focuses on a vital topic for all who want to age in good health, namely preventing falls, and potential fractures. Falls are a leading cause of injury, disability and loss of independence among seniors, often resulting in fractures, hospitalizations and long term health complications. Maintaining mobility…
…
continue reading
1
166 Haleh Shoa: Preserving Memories and Memorabilia
38:19
38:19
Spill senere
Spill senere
Lister
Lik
Likt
38:19
EPISODE 166 OF GROWING OLDER LIVING YOUNGER with Haleh Shoa, focuses on preserving memories and memorabilia as a gateway to our story, our past and our legacy. Haleh is the founder and CEO of Picturli, a photo organization, curation, archiving and design studio, that helps families, individuals and businesses transform their photo chaos into one so…
…
continue reading
1
175 Dr. Jonathon Hill: How Applied Epigenetics May Extend Your Healthspan
36:43
36:43
Spill senere
Spill senere
Lister
Lik
Likt
36:43
In EPISODE 175 OF GROWING OLDER LIVING YOUNGER with Dr. Jonathon Hill, VP of Science and Technology at Wasatch Biolabs, we explore the importance of epigenetics in understanding and combating unhealthy aging and the so-called aging-associated disorders. He explains how epigenetic effects such as DNA methylation, hydroxy-methylation and addition of …
…
continue reading
1
174 Kimberley Gillan: Healthy Eating on a Low Budget
37:48
37:48
Spill senere
Spill senere
Lister
Lik
Likt
37:48
In EPISODE 174 OF GROWING OLDER LIVING YOUNGER we explore the important topic of Food Security. Dr. Gillian Lockitch and Kimberley Gillan discuss the importance of maintaining healthy nutrition despite rising food costs and a restrictive budget. Kimberley shares insights from her book "How Low Can You Go: Nutritious Meals from $50 per Week." She em…
…
continue reading
1
Understanding Splenectomy in PK Deficiency
27:34
27:34
Spill senere
Spill senere
Lister
Lik
Likt
27:34
On this episode, host Dr. Rachel Grace interviews Dr. Satheesh Chonat, a pediatric hematologist and expert in red cell disorders. They discuss Dr. Chonat’s career path and focus on the complexities of managing anemia in patients with pyruvate kinase deficiency, emphasizing the role of the spleen. They explore why splenectomy might be considered, po…
…
continue reading
1
173 John E Lewis: Polysaccharides and a Plant-based Diet in Brain Health
40:54
40:54
Spill senere
Spill senere
Lister
Lik
Likt
40:54
In EPISODE 173 OF GROWING OLDER LIVING YOUNGER we explore whether a whole food, plant-based diet and dietary supplements, particularly polysaccharides from aloe vera and rice bran, are optimal for health, in particular brain health. The founder and president of Dr Lewis Nutrition, Dr John Lewis, has a passion for educating others about the value of…
…
continue reading
1
172 Sky Bergman: Wisdom from Lives Well Lived
40:25
40:25
Spill senere
Spill senere
Lister
Lik
Likt
40:25
EPISODE 172 OF GROWING OLDER LIVING YOUNGER focuses on aging gracefully and the wisdom we acquire through a life well lived. Most people would agree that the most powerful factor in aging well is a positive mindset, the absolute belief that you can age youthfully and in good health. Imagine having a treasure trove of examples of resilience, positiv…
…
continue reading
1
PKD and the Gift of Life, feat. Patient Advocate Valen Keefer
40:10
40:10
Spill senere
Spill senere
Lister
Lik
Likt
40:10
In this episode of the podcast we speak to Valen Keefer, a professional speaker and patient advocate who was diagnosed with polycystic kidney disease (PKD) at age 10. Valen has faced a number of challenges in her journey, including a double organ transplant, and now inspires other PKD and chronic illness patients by sharing her story. Connect with …
…
continue reading
1
171 Meesha Dogan PhD. A.I. Epigenetics and Heart Health
42:42
42:42
Spill senere
Spill senere
Lister
Lik
Likt
42:42
In EPISODE 171 OF GROWING OLDER LIVING YOUNGER we explore the transformative role of artificial intelligence (AI) applied to epigenetics to enhance heart health, specifically coronary heart disease, the primary cause of heart attacks. I talk with Meesha Dogan, CEO, Co-Founder, and Director of Cardio Diagnostics, an AI-driven precision cardiovascula…
…
continue reading
1
170 Jared Pelo MD. Enhancing Longevity: AI, Data and Healthspan
37:23
37:23
Spill senere
Spill senere
Lister
Lik
Likt
37:23
EPISODE 170 OF GROWING OLDER LIVING YOUNGER focuses on the transformative potential of AI in healthcare, emphasizing its ability to enhance patient care, diagnostics, and treatment outcomes. Jared Pelo, MD shares his experience in integrating AI into medical practice, focusing on prevention and personalized health. The conversation highlights the i…
…
continue reading
1
169 Jennifer Powers PhD. Beyond Our Origins: Using Evolutionary Science to Thrive. Part 2.
34:52
34:52
Spill senere
Spill senere
Lister
Lik
Likt
34:52
In EPISODE 169 OF GROWING OLDER LIVING YOUNGER, I again talk with Jennifer Powers PhD, co-author with Luke Comer, of the newly released book, On the Origin of Being: Understanding the Science of Evolution to Enhance your Quality of Life. We explore foundational areas in which evolutionary mismatch between humans and modern society may lead to vario…
…
continue reading
1
168 Jenny Powers PhD. Beyond our Origins: Using Evolutionary Science to Thrive Part 1.
38:50
38:50
Spill senere
Spill senere
Lister
Lik
Likt
38:50
In EPISODE 168 OF GROWING OLDER LIVING YOUNGER I talk with Jennifer Powers PhD, co-author with Luke Comer, of the newly released book, On the Origin of Being: Understanding the Science of Evolution to Enhance your Quality of Life. I found this book to be both a fascinating and captivating read, and an intensively researched and reference text. So t…
…
continue reading
1
The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson
50:02
50:02
Spill senere
Spill senere
Lister
Lik
Likt
50:02
In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…
…
continue reading
1
167 Tina Huang PhD: Neuroscience to Holistic Brain Health
40:15
40:15
Spill senere
Spill senere
Lister
Lik
Likt
40:15
In EPISODE 167 OF GROWING OLDER LIVING YOUNGER we discuss how Tina Huang came to integrate her neuroscience background with a holistic approach to brain health, and the importance of identifying and managing environmental toxins, molds and other pathogens in addressing aging processes in the prevention of chronic diseases. We discuss the challenges…
…
continue reading
On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
…
continue reading
1
165 Cheri Merz: Packaging Your Expertise
33:58
33:58
Spill senere
Spill senere
Lister
Lik
Likt
33:58
In EPISODE 165 OF GROWING OLDER LIVING YOUNGER with Cheri Merz, we discuss “Packaging Your Expertise”, the multi-author book to which we both contributed a chapter. This book, the 5th installment in the Expertise-Based Business series, is available today on Amazon Kindle at a special launch price of US$0.99. Use this link https://amzn.to/4cQhHuO . …
…
continue reading
1
Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
42:39
42:39
Spill senere
Spill senere
Lister
Lik
Likt
42:39
This episode's guests include Dr. Tracy Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: W…
…
continue reading
1
164 Dr. Samantha Wellapilli: Self-Healing Anxiety
43:57
43:57
Spill senere
Spill senere
Lister
Lik
Likt
43:57
In EPISODE 164 OF GROWING OLDER LIVING YOUNGER with Dr. Samantha Wellapilli, we discuss the limitations of conventional medicine in addressing mental health issues and the need for a more comprehensive approach incorporating spiritual practices and connection with community. We explore the intersections of personal responsibility, spirituality, str…
…
continue reading
1
163 Tom Ingegno: Cupping and Other East Asian Therapies
39:53
39:53
Spill senere
Spill senere
Lister
Lik
Likt
39:53
EPISODE 163 of GROWING OLDER LIVING YOUNGER focuses on cupping, acupuncture and other East Asian therapies. We discuss the history and safety of cupping therapy, a traditional Chinese medicine practice, and its integration with modern research. We also explore various East Asian medical techniques and practices, including acupuncture, moxibustion, …
…
continue reading
1
Live Podcast from PKD Fest 2024 - Featuring Jonathan Lethem & Stephen Graham Jones
1:08:39
1:08:39
Spill senere
Spill senere
Lister
Lik
Likt
1:08:39
The 'Not a Book Club Book Club' podcast on PKD, his books, and influence.We recently went live from the Philip K. Dick Festival in Fort Morgan, CO, along with fellow DickHeads Jonathan Lethem & Stephen Graham Jones. I was at home but had fun in the chat and even managed to get some technical difficulties under control once I realized I could. Enjoy…
…
continue reading
1
Ewing Sarcoma and the New Normal, feat. Patient Advocate Brandi Benson
19:48
19:48
Spill senere
Spill senere
Lister
Lik
Likt
19:48
In this episode of the podcast we sit down with Brandi Benson, a U.S. army veteran, author and patient advocate who was diagnosed with Ewing sarcoma in 2008. That’s one of rare family of cancers that develop in bones and the surrounding soft tissues. Brandi shares her story of resilience and survivorship, hoping to inspire others to share their can…
…
continue reading
1
162 Sherri Lukac: Pillars of Wellness and Personal Empowerment
39:35
39:35
Spill senere
Spill senere
Lister
Lik
Likt
39:35
EPISODE 162 OF GROWING OLDER LIVING YOUNGER focuses on four pillars of wellness, and the importance of mind-body practices, such as yoga and meditation, in managing stress and anxiety. We emphasize the need to identify your passions and purpose in life, and to listen to your body through personalized nutrition rather than following the latest fad. …
…
continue reading
1
161 Dr. Heather Sandison. Reversing Alzheimer's
41:19
41:19
Spill senere
Spill senere
Lister
Lik
Likt
41:19
EPISODE 161 OF GROWING OLDER LIVING YOUNGER focuses on demonstrable benefits of lifestyle adaptations for reversing Alzheimer's.I talk with Dr. Heather Sandison, a renowned naturopathic doctor specializing in neurocognitive medicine, and author of the newly released book, Reversing Alzheimer’s: The New Toolkit to Improve Cognition and Protect Brain…
…
continue reading
1
Raising Two Children with PK Deficiency
26:53
26:53
Spill senere
Spill senere
Lister
Lik
Likt
26:53
On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
…
continue reading
1
50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
33:03
33:03
Spill senere
Spill senere
Lister
Lik
Likt
33:03
In this episode of the podcast we sit down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year! Connect wi…
…
continue reading
1
160 Duncan Bhaskaran Brown: Real Men Quit... Drinking!
35:29
35:29
Spill senere
Spill senere
Lister
Lik
Likt
35:29
EPISODE 160 of GROWING OLDER LIVING YOUNGER focuses on alcohol use, excessive drinking, and the destructive effect of alcoholism on health. Alcohol consumption is highest in the Boomer Generation, and there are differences between alcohol use in men and women. I speak with Duncan Bhaskaran Brown, author of “ Real Men Quit. Our conversation revolved…
…
continue reading
1
Episode #50 - Puttering About in a Small Land
2:29:26
2:29:26
Spill senere
Spill senere
Lister
Lik
Likt
2:29:26
Hello PKD fans. We're back with the next straight novel, Puttering About in a Small Land, written early in PKD's career but published after his death. This is an interesting take on an extramarital affair. We are joined by PKD collector and scholar Frank Hollander to discuss this odd semi-autobiographical effort. Plus: Relatively long. Paul Giamatt…
…
continue reading
1
Interview #33 - Barry Malzberg - The Second Interview
1:22:19
1:22:19
Spill senere
Spill senere
Lister
Lik
Likt
1:22:19
The Two Davids (Agranoff & Wilson) sit down with author Barry Malzberg to discuss his books, legacy, and what it was like ascending the ranks amongst the new wave.Our Patreon ►► http://www.patreon.com/LanghorneJTweedElectric Larryland Discord ►► https://discord.com/channels/557458722268643329David's YouTube Channel ►► https://www.youtube.com/user/V…
…
continue reading
1
159 Dr. Torkil Faero: Balance Stress, Optimise Health and Live Longer
40:20
40:20
Spill senere
Spill senere
Lister
Lik
Likt
40:20
Episode 159 of GROWING OLDER LIVING YOUNGER focuses on the use of monitoring devices and trackers, measuring biometric data such as heart rate variability, sleep patterns and multiple other approaches, to achieve optimal health and well-being. We explore the intricate relationship between sleep, movement, and music on overall health, and highlight …
…
continue reading
1
Helping Rare Parents Help Themselves, feat. Ronda Thorington, LPC
34:52
34:52
Spill senere
Spill senere
Lister
Lik
Likt
34:52
In this episode of the podcast we sit down with Ronda Thorington, the mother of child living with mixed connective tissue disease. Ronda is also a licensed professional counselor who specializes in empowering parents of children who are living with a rare or chronic diagnosis. Connect with Ronda: Website - Facebook - Instagram Editor's Note: Chroni…
…
continue reading
1
158 Sandra Scheinbaum PhD: Functional Medicine Health Coaching
37:49
37:49
Spill senere
Spill senere
Lister
Lik
Likt
37:49
EPISODE 158 OF GROWING OLDER LIVING YOUNGER focuses on functional medicine, and the value of having a health coach to support the lifestyle changes you might make to promote wellness and live younger longer. I talk with functional medicine health coach trainer, Sandra Scheinbaum, founder and CEO of the Functional Medicine Coaching Academy (FMCA), a…
…
continue reading
1
IPF and the Importance of Clinical Trials, feat. Patient Advocate Murray Walz
18:08
18:08
Spill senere
Spill senere
Lister
Lik
Likt
18:08
In this episode of the podcast we sit down with Murray Walz, a patient advocate who was diagnosed with the progressive lung diseases idiopathic pulmonary fibrosis (IPF) in 2019. Murray discusses the importance of support, clinical trials and why the family factor is crucial for IPF patients. Connect with the Canadian Pulmonary Fibrosis Foundation: …
…
continue reading
EPISODE 157 OF GROWING OLDER LIVING YOUNGER focuses on one of the key pillars of the Growing Older Living Younger Roadmap for healthy aging - positive relationships built through personal and community connections. We recognize the importance of positive relationships in counteracting negative, stress-response evoking emotions such as loneliness or…
…
continue reading
1
Raising & Being a Teen with PK Deficiency
32:47
32:47
Spill senere
Spill senere
Lister
Lik
Likt
32:47
On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
…
continue reading
1
156 Janet Singer Applefield. Janet's Story: Finding Herself in the Holocaust
34:43
34:43
Spill senere
Spill senere
Lister
Lik
Likt
34:43
EPISODE 156 OF GROWING OLDER LIVING YOUNGER focuses on the powers of love, resilience, curiosity and courage to enable one to survive the most profound and catastrophic childhood traumas imaginable. Used wisely, those same powers will lead us to age gracefully to live younger longer. My guest today exemplifies survival through courage and resilienc…
…
continue reading
1
Cut for Time - Frank's Story - Puttering About in a Small Land
54:19
54:19
Spill senere
Spill senere
Lister
Lik
Likt
54:19
Here is the intro slash bio slash interview with PKD collector and scholar Frank Hollander from our discussion of Puttering About in a Small Land. He asked if we wanted the long version and I'm glad we said we did. Enjoy.•Our Patreon ►► http://www.patreon.com/LanghorneJTweed•Electric Larryland Discord ►► https://discord.com/channels/557458722268643…
…
continue reading