Remarkable: Life with Rett Syndrome
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Innhold levert av Tracey Hoyng. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Tracey Hoyng eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towards October ,which is Rett Syndrome Awareness Month each year.
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13 episoder