A Parent's Early Perspective on Prader-Willi Syndrome: A conversation with Sheri and Jeremy Mills

More than Child's Play

We are thrilled to welcome to More Than Child’s Play two very special parents, Sheri and Jeremy Mills. They are the parents of a delightful, sweet, smart, and spunky almost 3 year old who happens to have Prader Willi Syndrome. In honor of PWS Awareness month, Sheri and Jeremy join us to share their journey as a way to educate and support other families and medical providers serving people with this rare disease. We discuss what learning their child had PWS was like for them, how they navigated and continue to navigate medical and support services for their daughter, and exciting upcoming and hopeful news in PWS research. They explain hyperphagia and the wholistic and healthy approach their family has implemented to set life long habits for their child. We discussed what they’d like medical providers and other parents to know and had a real conversation about maintaining parental mental health. If you are a family member or friend of someone with PWS or a healthcare provider, you won’t want to miss this conversation. Hearing their story will give you needed insight and inspiration.

Links based on discussion:

For donations to Prader-Willi Association USA: https://www.pwsausa.org/join-now/chapters/florida/ Donate button is at top right corner. Email Sheri screen shot of your donation to be entered in raffle: [e-mail]