Artwork

Innhold levert av EJ Scott. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av EJ Scott eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
Player FM - Podcast-app
Gå frakoblet med Player FM -appen!

148: Elizabeth Lucas-Smith - Choroideremia (CHM) Carrier

1:25:53
 
Del
 

Manage episode 184155788 series 86698
Innhold levert av EJ Scott. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av EJ Scott eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Elizabeth Lucas-Smith and I met in San Francisco back in 2007. 10 years later we meet up (outside of San Fran) and continue a talk we started a decade ago. We talk about the hereditary and degenerative eye disease - Choroideremia. Its a disease that hits both of our lives and families very hard. She is a carrier of it and I am going blind from it. Liz recently had twin girls who will likely be carriers of the gene and she recently had her son tested and was found to have Choroideremia. We talk about being a carrier, being raised by a blind father, having blind uncles, her feelings of passing on the gene, we also talk about her love of her husband, and how she struggled with postpartum depression, and so much more!!! We were able to have a lot of laughs along the way as well. Please Listen! Please Share! Please Enjoy!

Twitter @ejscott @EJPodcast

Instagram @ejscott1106

My website www.ejscott.com Charities to donate to www.crowdrise.com/7on7

RUNNING BLIND Documentary available on iTunes, google play and Amazon

  continue reading

183 episoder

Artwork
iconDel
 
Manage episode 184155788 series 86698
Innhold levert av EJ Scott. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av EJ Scott eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Elizabeth Lucas-Smith and I met in San Francisco back in 2007. 10 years later we meet up (outside of San Fran) and continue a talk we started a decade ago. We talk about the hereditary and degenerative eye disease - Choroideremia. Its a disease that hits both of our lives and families very hard. She is a carrier of it and I am going blind from it. Liz recently had twin girls who will likely be carriers of the gene and she recently had her son tested and was found to have Choroideremia. We talk about being a carrier, being raised by a blind father, having blind uncles, her feelings of passing on the gene, we also talk about her love of her husband, and how she struggled with postpartum depression, and so much more!!! We were able to have a lot of laughs along the way as well. Please Listen! Please Share! Please Enjoy!

Twitter @ejscott @EJPodcast

Instagram @ejscott1106

My website www.ejscott.com Charities to donate to www.crowdrise.com/7on7

RUNNING BLIND Documentary available on iTunes, google play and Amazon

  continue reading

183 episoder

すべてのエピソード

×
 
Loading …

Velkommen til Player FM!

Player FM scanner netter for høykvalitets podcaster som du kan nyte nå. Det er den beste podcastappen og fungerer på Android, iPhone og internett. Registrer deg for å synkronisere abonnement på flere enheter.

 

Hurtigreferanseguide

Copyright 2024 | Sitemap | Personvern | Vilkår for bruk | | opphavsrett