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Innhold levert av Mridula Bharathi. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Mridula Bharathi eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
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3. Here's a Warrior: Stiff-Person Syndrome ft Jennifer Trujillo

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Manage episode 372653690 series 3497981
Innhold levert av Mridula Bharathi. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Mridula Bharathi eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Send us a text

This week's episode is with Jennifer Trujillo, an inspiring woman and warrior of Stiff-Person Syndrome. She loves to sing, spend time with her family, and was also featured in Céline Dion's music video! In this interview, we talk about Jennifer's long and terrible experiences with the US Medical System, the necessity of research and advocacy for Stiff-Person Syndrome, the benefits of Alternative medicine, and ways we, as a community, can help people with Stiff-Person Syndrome feel more comfortable and safe. Her story is truly heartbreaking and inspiring, as she details how neighbors and even caregivers have made her feel inadequate. However, as a trigger warning, today's episode covers some heavy topics such as suicide and mentions of specific addictive drugs.

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast

Email me at- neurologicaldisorderpodcast@gmail.com

Follow Jennifer on Instagram- @jentru_mom6_sps_warrior

  continue reading

22 episoder

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iconDel
 
Manage episode 372653690 series 3497981
Innhold levert av Mridula Bharathi. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Mridula Bharathi eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Send us a text

This week's episode is with Jennifer Trujillo, an inspiring woman and warrior of Stiff-Person Syndrome. She loves to sing, spend time with her family, and was also featured in Céline Dion's music video! In this interview, we talk about Jennifer's long and terrible experiences with the US Medical System, the necessity of research and advocacy for Stiff-Person Syndrome, the benefits of Alternative medicine, and ways we, as a community, can help people with Stiff-Person Syndrome feel more comfortable and safe. Her story is truly heartbreaking and inspiring, as she details how neighbors and even caregivers have made her feel inadequate. However, as a trigger warning, today's episode covers some heavy topics such as suicide and mentions of specific addictive drugs.

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast

Email me at- neurologicaldisorderpodcast@gmail.com

Follow Jennifer on Instagram- @jentru_mom6_sps_warrior

  continue reading

22 episoder

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