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ALS takes a life every 90 minutes.
Manage episode 347008700 series 3314587
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You may remember the Ice Bucket Challenge that went viral a few years ago. It was started by a man diagnosed and who later died from ALS, which stands for Amyotrophic Lateral Sclerosis. ALS is a progressive neurodegenerative disease with no cure. Your body fails, but your mind stays sharp. Every 90 minutes someone is diagnosed with ALS, and someone dies from it.
Caregiver Tyler Gaetano knows about ALS all too well. His mother died from the disease in 2021 at 59. Tyler was his mother's main caregiver and her mouthpiece after she lost the ability to speak.
Jacky Rose the Executive Director of the CT. Chapter of the ALS Association say progress is being made with drugs that are prolonging life, but a cure for ALS is elusive. She says there are many services available, including grief counseling for caregivers. Tyler and his family used these services after the passing of his mom.
To find out how you can help fund a cure for ALS:
Donate to The ALS Association
To find out more about care giver services:
Support for ALS Caregivers | The ALS Association
For information on CT Paid Leave benefits:
CT Paid Leave Authority (PFMLA)| Home | Official Site
https://ctpaidleave.org/s/?language=en_US
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