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For our latest Dementia together podcast, we spoke to three people involved in a unique heritage project in Wales. Museums Inspiring Memories is a partnership between Amgueddfa Cymru and Alzheimer’s Society Cymru, funded by the National Lottery Community Fund. Its aim is to help museums in Wales be more inclusive and involving. You can visit alzhei…
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For our latest Dementia together podcast we spoke to Dawn Davies in Swansea.Around two years ago, Dawn was diagnosed with young-onset Alzheimer’s.It came as a massive shock and Dawn retreated from the world, even the idea of leaving the house terrified her. But with support from her family and the Dementia Hwb in Swansea’s Quadrant Shopping Centre,…
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For our latest Dementia together podcast we spoke to Philip Angrave, in Kent. Phil worked in the NHS for over 40 years and was a lecturer for more than 20 years, teaching undergraduate nurses and doctors. Phil decided to step back from work following a diagnosis of Lewy body dementia. He's now using his experience for a different purpose – calling …
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For our latest Dementia together podcast we spoke to Teresa Davies, in north-east Wales.Just over a decade ago, Teresa was diagnosed with young-onset Alzheimer’s. This came as a shock and left the usually positive Teresa in a dark place. She says she ‘didn’t know how to cope’ after her diagnosis and wasn’t given the right support. But a chance meet…
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For our latest Dementia together podcast we spoke to brothers Adam and Neil Joesbury and their dad Bob, in Birmingham. Bob has vascular dementia and the family works together to support each other.Adam has a learning disability and cares for Bob. This means Neil can continue to go to work and all three can be independent.At first, it was difficult …
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For our latest Dementia together podcast we spoke to retired nurse and youth worker Anne Hoad in Deal, Kent.Anne was diagnosed with a rare form of dementia called posterior cortical atrophy (PCA) in 2021. Anne's PCA was missed by her GP at first. They initially prescribed her anti-depressants. After speaking to friends who had experienced depressio…
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For our latest Dementia together podcast we spoke to retired teacher Nellie Suffolk, aged 82, in Bristol. Nellie was diagnosed with Alzheimer’s disease around six years ago. This diagnosis came as a shock because Nellie had put her symptoms down to getting older.Nellie was born in Zambia when it was still under British rule and was one of the few g…
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For our latest Dementia together podcast we spoke to Rashmi Paun, aged 77, in Brighton. Rashmi, a former physics teacher, initially put his memory problems down to age but was later diagnosed with Alzheimer’s. Rashmi had always had a way with numbers, but his wife Maggie soon had to take on more daily tasks, including the couple's finances. Maggie …
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For our latest Dementia together podcast we spoke to Gill Taylor, aged 70, in County Durham. Gill was diagnosed with young-onset Alzheimer’s when she was 58. At the time, she says she 'never even considered' that she could have dementia, because of her age.Contrary to her initial diagnosis, Gill has now been told she may have a rarer type of dement…
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For our latest Dementia together podcast we spoke to Warren Berman, aged 70, in Leeds. He was diagnosed with frontotemporal dementia in 2019 – the same type of dementia as Bruce Willis.Warren's neighbours were the first to notice his dementia symptoms. He has seen mental health issues from both sides, having experienced them himself and through sup…
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For our latest Dementia together podcast we spoke to Ananga Moonesinghe, aged 76, in Luton, who was diagnosed with Alzheimer’s in 2019.Ananga sees dementia as 'a different journey' and is a strong advocate for people with a dementia diagnosis. He recently helped to deliver an open letter - signed by 36,000 people - to Prime Minister Rishi Sunak. An…
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For our latest Dementia together podcast we spoke to Andy Paul in Deeside, who was diagnosed with Alzheimer’s in 2019, aged just 60.Andy, who remains an avid Leeds United fan, has valued setting some important things in place for the future, such as a will and power of attorney, while also being focused on enjoying the present. He’s keen to raise a…
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For our latest Dementia together podcast we spoke to Kath Sutherland, who is 82, lives in Wigan and has dementia. Kath tells us about making a new home for herself at Belong Wigan, a care village in Greater Manchester. She also discusses her earlier life in Liverpool and Australia, the impact dementia has had on many relatives, and life since her o…
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For our latest Dementia together podcast we spoke to Shirley Williams, who is 80, lives in Brighton, and has Alzheimer’s. Shirley tells us about coming from British Guyana to England in the early 1960s, to work as a nurse. She also discusses her dementia diagnosis, and how she is doing all she can to keep her mind as sharp as possible, while refusi…
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For our latest Dementia together podcast we spoke to Michael Keenan, who is 62, lives in Omagh in Northern Ireland, and has young-onset Alzheimer’s. We chatted to Michael twice – in mid-2021 and early 2022 – to find out more about his life and the challenges he’s been facing during the pandemic. Despite enduring a difficult time, Michael believes t…
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For our latest Dementia together podcast we spoke to Pete Middleton, who is 67 and lives with his wife Pam near Kettering in the East Midlands. Pete was diagnosed with Alzheimer’s disease in January 2019, which forced him into early retirement. As Pete explains, he bounced back by using his experiences of dementia to support the work of Alzheimer’s…
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As we hopefully continue to emerge from the Covid pandemic, many of us will be looking forward to returning to something resembling normal life. But for Michael Andrews that may no longer be possible. Michael is 61 and has a rarer form of dementia called posterior cortical atrophy, also known as PCA. Hear about his ongoing attempts to navigate the …
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