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How do you find a disease that no one is looking for? This podcast explores the conundrum of anal cancer and pre-cancer; an HPV-related disease that is misunderstood and often misdiagnosed. The anus is a topic that we don’t talk about…perhaps because this part of our body creates an odd sense of uncleanliness, taboo, and shame. Our podcast will be frank, practical discussions with international medical experts, patients and advocates. We will break through the shame, blame, and denial, and b ...
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Anal Cancer Foundation - Passion, Determination & Love: A Conversation with Justine & Camille Almada For Justine, Camille, and Tristian Almada anal cancer is personal. After losing their dear mother, Paulette, to Stage IV HPV-related anal cancer in 2010, the siblings set out to change the course of this disease. In her honor, they created what they…
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IMPROVING BARRIERS TO INTIMACY – A TOOLBOX Irena Nurkic is a specialist in continence and pelvic health physiotherapist at the Royal Perth Hospital in Western Australia. With over fifteen years of in-depth clinical expertise in management of pelvic health conditions in women, men and transgender persons, she lectures and serves as a clinical tutor …
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In this podcast Dr. Wong discusses how a talk he heard about HRA, high resolution anoscopy, piqued his interest in something he knew nothing about. He reasoned because he was caring for HIV patients that he should know more. He found his way to places where HRA was done and where he could be trained. His interest and dedication took him from his ho…
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Dr. Mary Birdsall didn’t see herself getting anal cancer, and neither did her physician colleagues. As a GYN specializing in IVF she found herself, not the expert, but the “man on the street.” In this interview, she speaks frankly and passionately about her own struggle to have her symptoms taken seriously and her commitment to agitate for primary …
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Dr. Joel Palefsky discusses his long career and trailblazing research. He discusses the cervical model which informed his research. He talks of the success of his groundbreaking ANCHOR study, a large clinical trial that found, as with the cervix, treating anal precancerous growths greatly reduces the chance of developing cancer. As his work evolved…
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THE ANUS HAS A PERCEPTION PROBLEM The founders of the HPV Cancers Alliance, Lillian Kreppel and actress, Marcia Cross speak frankly about how their own experience with anal cancer became the impetus to get the word out about HPV – related cancers. One had symptoms that were dismissed, the other no symptoms. It’s the difference between life and deat…
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BE PRESENT FOR THE PEOPLE YOU LOVE Alana Stewart stayed at Farrah Fawcett’s side supporting and advocating, through treatments and ultimately her friend’s heartbreaking death. This interview with the president of the Farrah Fawcett Foundation, reflects the kindness and love present in the pages of her best-selling book, My Journey With Farrah. A St…
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New York City general surgeon, Stephen Goldstone, was working in the realm of ano-rectal surgery, when he began noticing “strange histology.” At the same time, the University of California San Francisco, UCSF, was doing early research on anal cancer and pre-cancer. What he calls “a match made in heaven” combined research and treatment and heralded …
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Anal cancer and pre-cancer detection and treatment is a new and highly specialized field. Dr. Luis Barroso, president of IANS, discusses the organization as a resource for patients and providers. He shares the medical society’s vision that includes publishing guidelines and expanding the infrastructure for Anal Cancer and Dysplasia around the world…
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An Introduction to Going Viral How did we get here? Today, you will you will get to know our podcasters for “Going Viral: No one should die from embarrassment”, Dr. Eric Ganz and Mary-Jo Murphy, and how this podcast came to be. Dr. Ganz is a board-certified ObGyn and Anal Dysplasia expert and Mary-Jo Murphy is a Registered Nurse, Patient Advocate, …
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