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Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"
Manage episode 403663555 series 3528806
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"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm hearted, outspoken young woman who shares her compelling story of growing up in the midwest as a typical girl with friends, playing sports, going to college and now at 30, working as a geographic information systems technician. However, atypically, she shares how she humbly navigates life unsure of the full details of her CAH.
In this impactful episode Lindsey opens up to Dina and Stephanie about many topics including an over due conversation she wishes she had had 20 years ago as well as a detailed account of her recent life-threatening adrenal crisis, a first on CAH Pulse.
Finally, Lindsey unlocks a valuable lesson which may change the way parents speak to their children, whether r not their child is living with CAH.
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