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Episode 6 - Spotlight on AFE Awareness Day with Miranda
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In this episode of Power of MoMMA’s Voices, we have a special episode to commemorate Amniotic Fluid Embolism Awareness Day. Nicole Purnell interviews Miranda Klassen, an AFE survivor and the founder and executive director of the Amniotic Fluid Embolism (AFE) Foundation. Her passion for raising awareness of AFE was created from her own experience, which she shares in this podcast. She also explains the mission of the AFE Foundation and some of the life-changing programs that the foundation is involved with including, education, research, the AFE registry (which is the largest in the world), and support groups. “We do a lot of things to support our community. They're so very special to us,” said Miranda. Miranda also discusses meaningful volunteerism and the role that MoMMA’s Voices plays. The conversation concludes with a discussion of AFE Awareness Day and the tradition of lighting a candle on March 27th.
“We as a community embrace one another, despite whatever the outcome is, where we have grievers and survivors that get together…” (Miranda)
“I think some of the biggest wins we've had have been having a space where families can go and have hope.” (Miranda)
“…being able to connect with others that really understand the shoes that you're walking in. They've worn their own. They've worn them down. There might be on their second pair. But they understand what it's like.” (Nicole)
About MoMMA's Voices
MoMMA’s (Maternal Mortality and Morbidity Advocates) Voices is the first-ever maternal health patient advocacy coalition established in 2018, to amplify the voices of people who have experienced childbirth complications or loss - especially those who have been historically marginalized - ensuring they are equipped and activated as partners with providers and researchers to improve maternal health outcomes.
This is a program of the Preeclampsia Foundation, a 501(c)(3) non-profit organization, and is supported by a grant through Merck for Mothers. For more information, visit mommasvoices.org and preeclampsia.org.
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