))
Episode #9 Patient Centered View of Narcolepsy
Manage episode 442256736 series 2662202
Innhold levert av The White Noise Podcast. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av The White Noise Podcast eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy.
SHOW NOTES
- Introduction of Guest: (5:00)
- Matt’s Best Advice (11:00)
- Matt’s Role in the sleep community (12:40)
- Matt’s symptoms onset (15:00)
- Matt’s additional symptoms (19:00)
- Matt’s onset of cataplexy (23:00)
- Cataplexy triggers (24:45)
- Delayed diagnosis: (27:00)
- Nightmares and sleep paralysis onset (31:30)
- One more question about sleep paralysis (34:15)
- Partial cataplexy (37:50)
- Diagnosis and Management: (39:00)
- Pitolisant (43:45)
- Strategic Napping (44:15)
- Bitter Pills (45:15)
- AASM revised Guidelines (47:22)
- Sodium Oxybate and Cataplexy (49:00)
- Finding a sleep physician to manage narcolepsy (55:00)
- Sleep apnea (60:30)
- MSLT (62:15)
- Treat Clinically (65:00)
- 4 pillars of management (66:00)
- Patient request/feedback (68:00)
- Academic vs private practice (71:30)
Links to articles and guidelines referenced in this episode are included
Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.
18 episoder
Del
