Von Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin Wait, How Do You Spell That? A Rare Disease podcast

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Fitness Rare Disease Patient Worthy

Innhold levert av Patient Worthy. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Patient Worthy eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Wait, How Do You Spell That? A Rare Disease Podcast « »
Von Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin

8M ago 8:13

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Innhold levert av Patient Worthy. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Patient Worthy eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Patient Worthy's award-winning podcast is back! In this episode, we discuss Von Hippel-Lindau Disease. That's a genetic condition that causes constant tumor growth, commonly in the eyes, spine, brain and kidneys. Patient advocate Justin Corbin shares his diagnosis and treatment journey, which stretches from the 1990s today.

Read more about Justin's journey in this interview over at PatientWorthy.com.

To learn more about Von Hippel-Lindau Disease, check out the VHL Alliance.

Chronic conditions and rare diseases don't discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, reach out to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

… continue reading

67 episoder

#Fitness #Rare Disease #Patient Worthy

Artwork

Von Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin

Wait, How Do You Spell That? A Rare Disease Podcast

published 8M ago

Del

MP3•Episoder hjem

Innhold levert av Patient Worthy. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Patient Worthy eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

Patient Worthy's award-winning podcast is back! In this episode, we discuss Von Hippel-Lindau Disease. That's a genetic condition that causes constant tumor growth, commonly in the eyes, spine, brain and kidneys. Patient advocate Justin Corbin shares his diagnosis and treatment journey, which stretches from the 1990s today.

Read more about Justin's journey in this interview over at PatientWorthy.com.

To learn more about Von Hippel-Lindau Disease, check out the VHL Alliance.

Chronic conditions and rare diseases don't discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, reach out to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

… continue reading

67 episoder

#Fitness #Rare Disease #Patient Worthy

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