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EP 69: Breath Taking and the Boundlessness of Love with Jessica Fein
Manage episode 447568565 series 3558293
Innhold levert av Ken Barringer. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Ken Barringer eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
When faced with a medical condition our first instinct may be to find a solution to the problem. How do we fix this? What is the treatment plan? When a disease is rare there may not be a solution. When this happens, we need to shift gears. Jessica’s daughter Dalia was diagnosed with a rare degenerative disease at age 5 and lived another 12 years before dying. With her book Breath Taking; A Memoir of Family, Dreams and Broken Genes Jessica writes on concepts we might think as contradictory. We can find pain and joy, be fearful and fearless, have times of despair and hope. In this episode, Jessica talks with a genuineness and optimism that is inspiring to those who have loved and lost.
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