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Can You Cure The Disease
Manage episode 285493651 series 2864703
Innhold levert av Josie Dye. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Josie Dye eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
In this weeks episode we talk to one family who is on a mission to find a cure for their boy Michael. He was diagnosed a hereditary spastic paraplegia type 50, otherwise known as SPG50. Children afflicted with this genetic disorder present with a variety of symptoms, including global developmental delay, microcephaly, seizures, malformation of the brain, and hypotonia. What would it take to find a cure for your child's rare disease? I talk to Terry, Michaels father and we speak about the process for raising money, hiring a team and what this entails. Would you give up a good chunk of your life, your money, and even your career to find a cure for your child? What if the cure never comes?
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