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Overcoming Obstacles and Driving Progress for Sickle Cell Disease with Maximal Being & Dr. Scott & Kyle | Part 2, Podcast 83
Manage episode 448461776 series 3499097
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In this episode of the Maximal Being podcast, Jacky P discusses sickle cell disease with Dr. Scott Peslak and Kyle Smith. Dr. Scott explains that sickle cell is a genetic disorder affecting hemoglobin, leading to stiff red blood cells that can block blood flow and cause pain, organ damage, and other complications. Kyle, a sickle cell warrior, emphasizes the importance of understanding one's sickle cell status and the need for better care models beyond emergency rooms. They highlight the role of infusion centers and the need for more sickle cell experts. Dr. Scott also discusses the potential of new therapies and the importance of national registries for better understanding and care of sickle cell patients.
Topics
- Sickle Cell Disease and Its Impact on Daily Life
- Challenges in the Corporate World and Personal Experiences
- Current and Emerging Treatments for Sickle Cell Disease
- The Importance of Continuous Learning and Advocacy
This week’s guests are Dr. Scott Peslak, a physician scientist at the University of Pennsylvania, who caters to sickle cell and thalassemia patients. Kyle Smith, a nonprofit professional who owns Crescent Foundation, a nonprofit organization dedicated to serving individuals with sickle cell disease in the Philadelphia area.
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