Trusting Your Gut: A Mother’s Journey with Molley Regan

The WHoly Mom Chat

Parenting is tough sometimes. But when your child is struggling with a disability or health issues, it can be very overwhelming.
This is especially true when you can’t get the proper diagnosis, the key to getting effective help is understanding what’s going on and advocating for your kids with the right doctors and specialists.
Today on the show, I’m joined by Molley Regan. I sat down to chat with Molley about her journey with her daughter Grace’s diagnosis of hereditary spastic paraplegia (HSP) 54 and how Molley followed her gut to find the correct diagnosis and treatment for her daughter. We also dive into information and resources for parents who are going through a similar situation.
Molley Regan is a proud wife, mom, advocate, and full-time Cyber Project Manager for a large Technology & Financial Institution. She has been married to her college sweetheart for 13 years, Tim. They reside in Alexandria, VA with their beautiful daughters Reese and Grace and their crazy, golden retriever George.
Molley and her family were on an incredible high/low journey for answers for their youngest daughter and the mobility limitations and challenges she was facing. In October 2020, during a pandemic, they took a leap of faith and pursued a life-altering neurosurgical procedure (SDR) at John’s Hopkins Children’s Hospital. Grace overcame the intense physical rehabilitation and is still continuing to get stronger, every day. SDR involves accessing nerves within the spinal cord, determining which of the nerve fibers are causing the spasticity, and severing those nerves.
Do you know about my coaching services? My mission here at Wholy Mom is to empower women to find and nurture their true selves through the transformation of mind, body, and spirit. With my coaching clients, I focus on your individual needs, to understand your specific situation. Together, we create a personalized plan to help you meet your goals. These sessions can take place in person or virtually.
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RESOURCES -

My Website: http://www.wholymom.com

Follow me on IG: @wholymom or Facebook: facebook.com/wholymom
Have Questions? Send me an email at: [e-mail]
Connect with Molley and find out more information about hereditary spastic paraplegia:
Website: www.gracesquad.com
Spastic Paraplegia Foundation
Early Childhood Intervention Programs
Selective Dorsal Rhizotomy Q&A with Dr. Robinson
To get the full version of the show notes - https://wholymom.com/podcast/episode11

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