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Transforming Grief into Positive Action with Ilissa Reich
Manage episode 436604857 series 3317851
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This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.
What You Will Learn:
- The challenges faced by families dealing with FOXG1 syndrome.
- The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
- The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
- The importance of community support for families with special needs children.
About ‘Believe in a Cure’:
Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.
Connect with Believe in a Cure:
- Website: https://www.webelieveinacure.org/
- Instagram: @ilissareich
This episode is a powerful testament to the strength and determination of parents advocating for their children's health.
Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher.
Learn more about Pearl Mashour at www.femalefluence.com
- Connect with me on IG @pearlmashour_femalefluence
- Follow along on TikTok
- Subscribe on YouTube
- Connect with me on FB @femalefluence
- Email: info@femalefluence.org
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