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Innhold levert av Pearl Mashour. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Pearl Mashour eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.
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Transforming Grief into Positive Action

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Manage episode 436604857 series 3317851
Innhold levert av Pearl Mashour. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Pearl Mashour eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

What did you think of the podcast? Send your comments here!

This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.

What You Will Learn:

  • The challenges faced by families dealing with FOXG1 syndrome.
  • The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
  • The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
  • The importance of community support for families with special needs children.

About ‘Believe in a Cure’:

Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.

Connect with Believe in a Cure:

This episode is a powerful testament to the strength and determination of parents advocating for their children's health.

Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher

Learn more about Pearl Mashour at www.femalefluence.com

Connect with me on IG @pearlmashour_femalefluence
Follow along on TikTok
Subscribe on YouTube

Connect with me on FB @femalefluence

Email: info@femalefluence.org


  continue reading

37 episoder

Artwork
iconDel
 
Manage episode 436604857 series 3317851
Innhold levert av Pearl Mashour. Alt podcastinnhold, inkludert episoder, grafikk og podcastbeskrivelser, lastes opp og leveres direkte av Pearl Mashour eller deres podcastplattformpartner. Hvis du tror at noen bruker det opphavsrettsbeskyttede verket ditt uten din tillatelse, kan du følge prosessen skissert her https://no.player.fm/legal.

What did you think of the podcast? Send your comments here!

This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.

What You Will Learn:

  • The challenges faced by families dealing with FOXG1 syndrome.
  • The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
  • The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
  • The importance of community support for families with special needs children.

About ‘Believe in a Cure’:

Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.

Connect with Believe in a Cure:

This episode is a powerful testament to the strength and determination of parents advocating for their children's health.

Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher

Learn more about Pearl Mashour at www.femalefluence.com

Connect with me on IG @pearlmashour_femalefluence
Follow along on TikTok
Subscribe on YouTube

Connect with me on FB @femalefluence

Email: info@femalefluence.org


  continue reading

37 episoder

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