Beste Undiagnosed Disease podcaster (2024)

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Guarded Secrets About Catholic Church, And Living 20 Years With An Undiagnosed Autoimmune Disease || Margaret Mary O’Connor 1:24:07

4d ago1:24:07

1:24:07

Real stories, told by real people. Hope this finds you all in good spirits. We're back with another installment, and pleased to bring another story to light. Today Margaret joins us and she's got a story to tell. Living twenty years with an undiagnosed autoimmune disease, she explains the utter anguish she dealt with physically, emotionally and spi…

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Episode 489 - David Lake 10:33

5d ago10:33

10:33

In this episode, David Lake a retired jet pilot, discusses his experience with pulmonary arterial hypertension, initially misdiagnosed as exercise-induced asthma. Lake also manages hemophilia, COPD, and irregular heartbeats, impacting his health significantly. Despite these challenges, he remains hopeful and active in his community and church. His …

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How To Save A Life 18:07

5d ago18:07

18:07

No matter what area of medicine you work in, you are saving lives and improving your patients' quality of life. Sometimes that happens in dramatic fashion and sometimes you might not even notice it happening at all. In this episode, Jody recalls his experiences on the ambulance, in the hospital, and in the primary care clinic.…

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Never Been Sicker #74: Overcoming Sugar Addiction: A Journey to Health with Florence Christophers 49:46

10d ago49:46

49:46

In this episode of Never Been Sicker, Michael Rubino interviews Florence Christophers, a Certified Health Coach, who discusses her personal battle with sugar addiction and its connection to health issues like migraines, depression, and mold exposure. They explore how refined sugars act like opiates in the brain and how sugar exacerbates mold toxici…

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Episode 488 - Lori Myers 5:27

12d ago5:27

5:27

Lori Myers, shares her experience living with VSD and Tetralogy of Fallot, which caused her to be born as a "blue baby" and have various health issues throughout her life. After multiple surgeries and diagnoses, she was eventually told she had pulmonary arterial hypertension (PAH). Despite the prognosis, Lori is now in her tenth year since the diag…

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Episode 487 - Sue Liss 12:19

19d ago12:19

12:19

PAH patient and Chicago-area support group leader, Sue Liss, discusses her pulmonary arterial hypertension diagnosis. Sue is involved with multiple PH related advocacy groups. Through these groups, she offers support and guidance, particularly in navigating medication funding challenges and accessing the right care, emphasizing the importance of co…

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Solitude And The Gold In Silence || In Between The Stories 36:19

19d ago36:19

36:19

We are back, and I sure hope things are lovely on your end. It's a new day, and new week so let us take in that fresh breath of life and reflect in thanksgiving on all the things we do have in life. There's a lot to appreciate. From the smallest to tallest of things. Here's another installment of an 'in between the Stories'. Something weighing on m…

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Episode 486 - Scott E. Olitsky, MD 8:51

26d ago8:51

8:51

In this episode, Dr. Scott Olitsky, the Global Center of Excellence Outreach Director for Cure HHT, discusses hereditary hemorrhagic telangiectasia (HHT), a genetic disease characterized by abnormal blood vessel development. HHT can cause bleeding in various parts of the body, with nosebleeds being the most common symptom. In some cases, HHT can le…

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Charcot-Marie-Tooth Disease with Dr. Todd Oyen 43:27

26d ago43:27

43:27

Dr. Todd Oyen returns to discuss his personal experience living with CMT. As it happens, September is CMT awareness month so this is the perfect time to share this special conversation. Links: 1) Charcot Marie Tooth Association 2) Hereditary Neuropathy Foundation 3) Muscular Dystrophy Association 4) World Tang Soo Do Association 5) Oyen's North Ala…

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Episode 485 - Eric Borstein 11:10

1M ago11:10

11:10

Eric Borstein, who lives with pulmonary arterial hypertension, is walking from Los Angeles to San Diego to raise funds and awareness for the benefit of Team PHenomenal Hope. On September 21st, 2020, while at home, he collapsed from massive right heart failure and almost died. On September 22nd, 2024, four years after his PH diagnosis, he begin his …

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I'm Still Mad About It 40:01

1M ago40:01

40:01

Apparently Jody doesn't know how to let it go. Listen as he rants about incidents from the distant past that still get under his skin. If you observe Festivus, consider this an early airing of grievances. Sound effects by Voicemod.

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Episode 484 - Thekla McGinley 10:13

1M ago10:13

10:13

In this episode, Thekla McGinley, a PAH patient and advocate, shares her journey with pulmonary arterial hypertension (PAH) and the changes she has witnessed in the treatment options and education for medical professionals. She emphasizes the importance of raising awareness and ensuring that patients have access to proper treatment. Thekla also dis…

1
A New(-ish) Antacid Medication 11:49

1M ago11:49

11:49

The new PCAB Voquenza (vonoprazan) is being marketed as a superior alternative to PPI therapy for acid-related conditions (GERD with or without erosive esophagitis, H. pylori eradication). Are these two mechanisms of action really that different? Jody investigates. References: 1) Prescriber information: https://www.phathompharma.com/wp-content/uplo…

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Never Been Sicker #73: How Mold Can Trigger Lyme Disease and Other Hidden Infections, Interview with Dr. Eric Potter 46:35

1M ago46:35

46:35

In this episode of "Never Been Sicker," Michael Rubino sits down with Dr. Eric Potter, a renowned functional medicine practitioner, to discuss the hidden dangers of mold and Lyme disease. Dr. Potter shares his personal journey with mold toxicity in his own family, his experiences treating thousands of patients, and the essential steps to detoxify y…

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Episode 483 - Dr. Morris Salem 7:24

2M ago7:24

7:24

Dr. Morris Salem is a pediatric congenital cardiologist and adult congenital heart disease specialist at Kaiser Permanente in Southern California. He takes care of patients of all ages, from fetuses to elderly individuals. Dr. Salem's primary focus is interventional cardiac catheterization, specifically the closure of holes in the heart. He also de…

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Disaster Response: Hurricane Ike 16:48

2M ago16:48

16:48

During the week prior to Hurricane Ike making landfall in Texas, paramedics from all over the country helped evacuate patients from the storm's path. In this episode of Critical Incident from Knowledgeable Provider, Jody shares his personal experiences from that response.

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Mind, Music, Love, Therapy In Writing || Yvette 46:54

2M ago46:54

46:54

Real stories, told by real people. We are back with another one. And right out the gate, hope you're doing just fine. Today Yvette joins us and she's got a story to tell. Since the age of 9 years old Yvette has struggled with Mental Health. Her childhood was broken up by abuse, and bullying. Being so young, and without any outside support, Yvette t…

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Episode 482 - Claire Champion, MSN, APRN, CPNP 6:39

2M ago6:39

6:39

Claire Champion is a nurse practitioner at Texas Children's Hospital, specializing in pulmonary hypertension. As a nurse practitioner, she has the opportunity to see some of the patients as outpatients, which allows her to witness positive outcomes and the resilience of children. She also highlights the need for nurses to have a support system to c…

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Secrets of Academic Success: Test-Taking Strategy 43:58

2M ago43:58

43:58

It's back-to-school time! Are you ready? Jody shares his suggestions for passing those exams with flying colors. How To Study A Textbook by Tom Meyer

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Episode 481 - Charles Burger, MD 9:26

2M ago9:26

9:26

In this episode, Dr. Charles Burger, the medical director of the Pulmonary Vascular Center at Mayo Clinic in Jacksonville, Florida, discusses the importance of patient registries, specifically the Pulmonary Hypertension Association’s PHA Registry (PHAR) for pulmonary hypertension. This registry collects clinical information and surveys from patient…

1
Undiagnosed 18:25

2M ago18:25

18:25

The sad story of a patient whose diagnosis was delayed until it was too late.

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Never Been Sicker #72 - The Silent Threat: A Clean House Doesn't Mean Mold-Free, Interview with Mold Dog Inspector 47:40

2M ago47:40

47:40

Join host Michael Rubino and special guest Viktoriya, a Mold Dog Inspector, as they delve into the often-overlooked dangers of poor air quality. Victoria shares her personal battle with hidden mold in her seemingly spotless home and its profound impact on her health and family. Viktoriya is a 10 year long Mold Illness Survivor. She is the founder o…

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Episode 480 - Dr. Dunbar Ivy

2M ago

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In this episode, Dr. Dunbar Ivy, a pediatric cardiologist, discusses the value of repeat heart catheterization in patients with pulmonary hypertension. He highlights a recent study that compared the findings of the first and second heart catheterizations. The study showed that while the first heart catheterization is important for diagnosis and cho…

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Request Line: Prostate Cancer Screening 21:10

2M ago21:10

21:10

Requested by KP listeners! An update on a patient from the previous prostate cancer episode and a deep dive into the history of prostate cancer screening. References: Kazuto, I. et al. Screening for prostate cancer: History, evidence, controversies and future perspectives toward individualized screening. International journal of urology. 2019; 26(1…

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Never Been Sicker #71 - Understanding The Global HealthDecline with Jared Pelo 32:00

2M ago32:00

32:00

In this episode, Dr. Jared Pelo and I discuss the alarming state of global health. Pelo shares his journey from emergency room physician to preventive health advocate. Learn about the importance of addressing chronic inflammation, the impact of environmental toxins, and practical steps to improve your health. Discover how personalized medicine and …

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Healing And Transformation, My First Hand Experiences With Ayahuasca || Allan 2:08:36

2M ago2:08:36

2:08:36

Real stories, told by real people. It's always great to be back and check in with another conversation. Today Allan joins us, and he's got a story to tell. I pray you all listen to this with an open mind. Allan's taking us for a ride, sharing his first hand experience with Ayahuasca. He's sat through hundreds of ceremonies in Peru with lineage Ship…

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Episode 479 - Claire Parker, MS, PNP, AC 11:47

2M ago11:47

11:47

In this episode, Claire Parker, a pediatric nurse practitioner, discusses the results of a study that examined the prevalence of anxiety and depression among adolescents with pediatric pulmonary hypertension. The project aimed to incorporate mental health screening into the standard care for PH patients, similar to what is done for cystic fibrosis …

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Never Been Sicker #70 - From Rainforest to Recovery: Heidi’s Mold Battle 1:03:04

3M ago1:03:04

1:03:04

In this episode I interview Heidi about her battle with severe mold toxicity. Heidi recounts her move to Vancouver Island, where her health began to decline due to mold exposure. She shares her symptoms progression, including fatigue, mental health issues, and muscle problems, and the challenges of being dismissed by doctors. Despite obstacles, Hei…

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Episode 478 - Tina Proulx 16:28

3M ago16:28

16:28

Tina Proulx was diagnosed with pulmonary hypertension at the age of 19. She experienced difficulty breathing and chest pain, leading to a diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH), a condition caused by blood clots in the lungs. Tina eventually underwent transplant and celebrated eight years post-transplant, surpassing the …

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Silent Voices: The Role of Sign Language Interpreters with Angie Carmody 1:00:28

3M ago1:00:28

1:00:28

Angie Carmody is an American Sign Language interpreter with Huntsville City Schools in Huntsville, Alabama. She talks with Jody about her years of experience in the field and offers some helpful insights about communicating with deaf people. Links: Alabama Institute for the Deaf and Blind Deaf Access Solutions Stayawhile Cabin Rental (Vrbo) Stayawh…

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Never Been Sicker #69 - Entrepreneur's Guide to Air Quality and Biohacking for Better Health, Interview with Bill Faeth 43:43

3M ago43:43

43:43

Discover the essential tips to maintaining optimal humidity levels in your home for a healthier lifestyle. Join me as I sit down with Bill Faeth to discuss practical strategies for controlling indoor humidity, preventing mold growth, and enhancing air quality. Learn from real-life experiences and expert advice to create a safer, healthier home envi…

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Episode 477 - Marilyn Hanft 9:51

3M ago9:51

9:51

Marilyn Hanft, a CTEPH patient, shares her experience with the condition. In 2011, she initially mistook her symptoms for asthma but later discovered she had clots in her lungs. Despite her health challenges, she remains determined to live life to the fullest. Hanft discusses her love for sailing and her current plan for writing a book about her sa…

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Never Been Sicker #68 - Black Mold Survivor: Nicole's Inspiring Health Journey 51:15

3M ago51:15

51:15

Nicole Ritter shares her harrowing experience of living in a mold-infested environment and its devastating impact on her health. She recounts her journey from constant sickness, anxiety, depression, and multiple health diagnoses to discovering the root cause – black mold. Together, they discuss the importance of air quality, the failures of the tra…

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Episode 476 - Scott Fleetwood 12:41

3M ago12:41

12:41

Scott Fleetwood, a former pulmonary hypertension patient from Buffalo, New York, shares his journey with rare diseases. He initially experienced shortness of breath while playing hockey and was later diagnosed with pulmonary hypertension and scleroderma. Scott received a double lung transplant in 2017. He discusses the initial fear he felt upon lea…

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My Battles With Post Partum Depression, Anxiety, And Imposter Syndrome, And A Will To Create || Kim 1:09:01

3M ago1:09:01

1:09:01

Real stories, told by real people. As always, it's nice to be back. Hope this finds you in good spirits. We've another story to share, and today Kim joins us, and she's got a story to tell. As a child, and through her early school years, Kim and her family moved around a bit. Her father would pick up different job opportunities. So that meant, havi…

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Never Been Sicker #67: Freediving World Record Holder on Stress Management, with William Trubridge 27:48

3M ago27:48

27:48

Join us in this episode of Never Been Sicker as world record freediver William Trubridge shares his journey from breaking records underwater to helping people manage stress and anxiety. Discover how the techniques he developed for freediving can be applied to everyday life to achieve mental calmness and improve overall well-being. 🔵 More episodes h…

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Episode 475 - Robert Frantz, MD 7:41

3M ago7:41

7:41

In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance med…

1
Lipid Management In A Nutshell 22:22

3M ago22:22

22:22

Jody reviews lipid management for primary care.Sources & Links:Pignone, M. & Cannon, C.P. Low-density lipoprotein cholesterol-lowering therapy in the primary prevention of cardiovascular disease. UpToDate.⁠AHA/ACC 2018 Cholesterol Management Guidelines⁠Canadian PEER Lipid Practice GuidelinesTriglycerides (Mayo Clinic)Cholesterol Basics (Johns Hopki…

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Never Been Sicker #66 - From Mold Toxicity to Holistic Health Coach, Interview with Jenipher Jasper 55:16

4M ago55:16

55:16

Meet Jenipher, a Certified Personal Trainer from Cambridge, Ontario, Canada, who has transformed her life after battling mold toxicity. 🟡 Let’s Connect... Website: https://www.themichaelrubino.com/cont... IG: https://www.instagram.com/themichaelr... TikTok: https://www.tiktok.com/@themichaelrubino FB: https://www.facebook.com/themichaelru... Linked…

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Episode 474 - Amy Gietzen 11:51

4M ago11:51

11:51

Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension,…

1
Story Time with Dr. Todd Oyen 41:06

4M ago41:06

41:06

Dr. Oyen and Jody swap "war stories" from their EMS careers. Crazy codes, celebrity encounters, the Olympics, hurricanes, non-human patients; you really never know what you're going to run into out in the field.

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Overcoming My Addictions - Gambling, and Alcohol || Justin 1:10:34

4M ago1:10:34

1:10:34

Real stories, told by real people. Nice to be back with you all. Hope this finds you in good spirits. We've got another story to share. Today Justin joins us, and he's got a story to tell. Growing up in Montana, in small town with a population of about 300 people. Justin enjoyed his childhood, recalling those times when his mother would take him up…

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Never Been Sicker #65 - Aǹalemma Water: How It Can Change Your Life – Interview with Mario Brainović 35:48

4M ago35:48

35:48

Join us in this episode of Never Been Sicker as we dive into the groundbreaking science of coherent water with Mario Brainović from Aǹalemma. Discover how Aǹalemma Water can transform your health and connect you to life in a profound way. 🔵 Use code NBS10 at checkout for 10% off! analemma-water.com Highlights: 00:00 Intro to the Podcast and Mario 0…

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Episode 473 - Alvin Rocha MSN RN CPN PHN 10:18

4M ago10:18

10:18

Alvin Rocha is a nurse care manager and pulmonary hypertension coordinator at Children's Hospital Los Angeles. He manages PH patients from birth to early adulthood. His main goal is to prepare these patients for the transition into the adult world. He is excited about the advancements in therapies and clinical trials and looks forward to attending …

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Hypertension Management In A Nutshell 29:02

4M ago29:02

29:02

Jody shares his general approach to managing hypertension in primary care. Links: 2020 IHS Hypertension Guidelines 2023 EHS Hypertension Guideline Update Racial & Ethnic Disparities in Hypertension

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Never Been Sicker #64 - Dana's Incredible Health Journey: Lyme, Mold, and Recovery 1:09:04

4M ago1:09:04

1:09:04

In this episode, Dana Parish shares her incredible journey from achieving success in the music industry to battling Lyme disease and severe mold exposure. Dana discusses her early career, the challenges of getting a proper diagnosis, and her experience with mold toxicity in her home. She highlights the importance of air quality, the complexities of…

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Episode 472 - Dunbar Ivy, MD 6:00

4M ago6:00

6:00

In this episode, Dr. Dunbar Ivy, a pediatric cardiologist at the University of Colorado, discusses the upcoming World Symposium on Pulmonary Hypertension, where experts from around the world will gather to discuss the progress made and future directions. Dr. Ivy highlights the work of the pediatric pulmonary hypertension task force, which aims to d…

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Emergency Management with Michael David Smith 1:13:39

4M ago1:13:39

1:13:39

Michael David Smith is the former director of the Colbert County, AL Emergency Management Agency. He speaks with Jody about the agency's role during both day-to-day operations and large-scale disasters.

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Cancer Twice, And A Bone Marrow Transplant, My Story || Jonathan 3:04:56

4M ago3:04:56

3:04:56

Real stories, told by real people. It's great to be back to share another story with you all. I certainly do hope this finds you in good spirits. Today Jonathan joins us, and he's got a story to tell. Originally from Ecuador. Life as a kid was pretty normal for Jonathan. He played soccer, hung out with friends, and enjoyed time around his family. A…

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Never Been Sicker #63 - Tackling Mold After Moving Back to the US, Interview with Valerie Bowden 43:59

4M ago43:59

43:59

Join us as we dive into Valerie Bowden's fascinating journey from backpacking across Africa to tackling mold issues in her new home in the USA. Discover how her experiences living in Ethiopia shaped her perspective on health and community. Learn essential tips for preventing mold and maintaining a healthy home. Valerie also shares insights into her…

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