FUMS 116 - Managing Daily Life as MS Progresses w/Jenn Powell

FUMS: Giving Multiple Sclerosis The Finger

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2y ago 34:39

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My guest today is Jenn Powell. She's an active advocate in the MS community, imparting her hopeful optimism to the real-life challenges facing those of us living with MS. Now with secondary-progressive MS, Jenn continues to elevate the patient voice to better the lives of our community.

Jenn is the Brand and Marketing Manager for BioNews, an organization that strives to create dynamic communities that give patients and caregivers a powerful voice. Jenn also writes for Multiple Sclerosis News Today (a subsidiary of BioNews) and is the host of the Multiple Sclerosis Podcast.

Jenn's attitude is optimistic, taking each day as it comes, recognizing her victories and being thankful for her gifts, but realistic about the limitations that MS has placed on her. I think it's an attitude that - if we can adopt even a small part of - it will do us, and the people around us, some good!

Topics covered in this episode include:

Jenn's life pre-diagnosis and her amazing technique for undergoing the dreaded Lumbar Puncture (or Spinal Tap) procedure!
Complementary therapies that she uses to help in her day-to-day life
Her belief that "the script for a day needs to be ripped up and torn apart"
Why Jenn felt she had to seek out her support network from outside of her family
The power that comes from sharing experiences with transparency

Full show notes and resources at https://fumsnow.com/fums116/

120 episoder